The Desmoid Tumor Research Foundation

Get Involved

Fundraising

YOU can make a difference

Desmoid tumors are rare.

The DTRF can only continue our progress with fundraising support from our community and supporters. Our fundraisers have told us the experience brings them joy, purpose, empowerment, and a strong sense of community. It is also essential to raising awareness for this rare disease. Fundraising for the DTRF not only helps us in our mission to find more answers for desmoid tumor patients, it’s also a great way to connect with others, team build, and have some fun at the same time. Explore the options below to get started!

Ways to Fundraise

RFA 5K & Fun Run

Founded as Running for Answers by desmoid tumor patient Sera Snyder in 2009, RFA 5K & Fun Run is the annual DTRF signature fundraising event.

It is the celebratory finale of the annual DTRF Together We Will Weekend. The desmoid tumor community and supporters gather to walk, run, and roll (wheelchairs welcome!) together as a unified force against desmoid tumors. RFA offers something for everyone; build a team, participate as an individual, create awareness, and help fundraise for a cure! RFA participants can also join to fundraise virtually from anywhere in the world.

Learn More

DIY (Do It Yourself!) Fundraising

Fundraise

Your Way

Help

Your Way

Participate

Your Way

Christina K’s DTRF Fundraising Experience

You can support the DTRF anywhere, anytime and join a community united by a bold vision: a world without desmoid tumors. Hosting your own fundraising event is a great way to recruit your local community to support you on your desmoid tumor journey. When patients or caregivers share their experience and the urgency of the DTRF’s mission through fundraising, they gain hope because they become part of the solution.

Get creative and innovative; you can do almost anything to fundraise for desmoid tumor patients. Have fun coming up with your own fundraising idea! You can turn your favorite hobby, talent, passion, or unique idea into a fundraiser on your own timeline any way you want. Make your special occasion – birthday, anniversary, wedding, graduation, a child’s first visit from the tooth fairy or even a holiday – a celebration. Collect donations for every mile you run or ride, host a backyard dinner party under twinkle lights, sell lemonade or cookies, organize a classic car and motorcycle show, or go all-out with a star-studded gala! If you can dream it, you can do it to help empower, impact, and engage desmoid tumor patients.

How it works.

We have the tools to make your fundraiser a success, and will be by your side every step of the way. Fill out our Fundraising Toolkit order form and contact development@dtrf.org for additional support.

See How Others Are Fundraising … Their Way

Basketball is life for Gabe, a high school senior and desmoid tumor patient. For the love of the game and desmoid research, he and his family hosted a basketball tournament at his school to raise funds for the DTRF.
Faith Over Fear Fundraiser - $17,200 raised
Jennifer’s daughters and a neighborhood friend decided to raise funds for the DTRF with a classic lemonade stand. The kids set up the stand right outside their house and raised over $100 for the DTRF!
DTRF Lemonade Stand - $100+ raised
Natalie was hoping to host a live fundraiser, but it was too much between chemo and a new baby. Instead, she designed a t-shirt and sold over 140 of them to friends and family.
Natalie’s T-shirt Campaign- $2,500 raised
Devonne hosted a Halloween party to remember - and to raise funds for the DTRF on behalf of her husband. Tickets were $30 per person and included drinks, a DJ, raffles, and costume prizes. No venue necessary - the party was hosted in Devonne’s own home!
Costume/Holiday Party for DTRF - $900+ raised
On the day after his first daughter was born, Jason learned that he had a large abdominal desmoid tumor. He and his wife now host an annual golf tournament to fundraise for a cure.
Swing For a Cure - St. Louis - $ 27,500 raised
Amy and her friends donned unicorn costumes and rainbow wigs and took a stroll around their local lake. Participants made donations to the DTRF!
Unicorn Prance 5K - $1,000+ raised
Joe hosts an annual beach volleyball tournament around Halloween. He provides a silent auction, raffles and swag for all participants, and they dress up in fun costumes and bring their families.
JoeStrong Volleyball Tournament - $6,200 raised

Fundraising Resources

Fundraising Toolkit

The DTRF here to help you have a successful DIY fundraiser. Our Fundraising Toolkit includes the Third Party Fundraising Agreement, the DTRF Branding Guidelines and suite of logo files, and a Fundraising Tip Sheet with best practices for a successful fundraiser. We have branded materials that spread awareness and encourage your network to learn more about the DTRF and desmoid tumors.

Request the DTRF Fundraising Toolkit

Facebook Fundraising

Facebook makes it incredibly easy to fundraise for the DTRF! Just one click and you’ll be on your way to setting up your fundraiser. Then, start posting about it! But don’t just share the link, be sure to tell your story and/or share why this cause is important to you. For an added boost, email friends and family with your fundraising link. Birthdays, diagnosis anniversaries, and Desmoid Tumor Awareness Month (September) are great times to start a fundraiser on Facebook.

Start a Facebook Fundraiser

I was so surprised and humbled at the response I received from my Facebook community after posting the link to my DTRF fundraising page. So many friends and family members were eager to donate. But the humbling part came from seeing others…friends who I didn’t even realize followed my Facebook posts, friends who I didn’t think were even active on Facebook, reaching out and donating. It was really moving and so special!
Alicia R.
Patient & Fundraiser

Quick Fundraising Setup & Donation Link

If you’ve got an event or activity for which you just need a quick fundraising link to provide supporters, click here.

In their own words...

“

“I let others see these vulnerabilities and it brings them into the journey with me. And by sharing my story and some of my tears, and all of my pains, others come to understand how important the research is to me and to all of us. And they want to donate and they want to help us find a cure.”

Rachel S.

Virginia, US

“

“The work that the DTRF is doing is so exciting and so encouraging that by being a fundraiser I’ve found it’s an arm of advocacy that makes me feel like I have some control over this disease in my life.”

Christina K.

New Jersey, US

“

“Giving back through raising funds for the DTRF helped me find some purpose despite the many horrible facets of a desmoid tumor diagnosis.”

Meredith B.

Corporate Fundraising

Join Our Community of Corporate Partners

The DTRF is honored to be working with passionate corporations in the country. These supporters are vital to helping us achieve our mission; to aggressively fund research to accelerate the development of improved therapies and ultimately find a cure for desmoid tumors. Together, we power innovative breakthrough research. Join us in making a meaningful difference in the lives of your staff, your customers, and the desmoid tumor community.

Ways to Partner

Corporate Giving

If you’re an employer, demonstrate your company’s commitment to cure desmoid tumors by making an investment in the DTRF’s mission. Partnering with the DTRF as a funder of our critical work is a powerful way to express your company’s social responsibility among staff, customers, and the desmoid tumor community.

Learn how corporate giving may benefit you by contacting us at development@dtrf.org.

Workplace Giving

Workplace giving is a unique concept that allows your employees the ability to make charitable donations directly from their paychecks. Contact us to add DTRF to your company’s donation portfolio.

To learn more, please contact us at development@dtrf.org.

Fundraising Events

Are you looking for ways to involve your employees in making an impact?

Learn more

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