The Desmoid Tumor Research Foundation

Get Involved

Fundraising

YOU can make a difference.

The DTRF can only continue our progress with fundraising support from our community and supporters. Our fundraisers have told us the experience brings them joy, purpose, empowerment, and a strong sense of community. It is also essential to raise awareness for this rare disease. 
Fundraising for the DTRF not only helps us in our mission to find more answers for desmoid tumor patients, but it’s also a great way to connect with others, team building, and have some fun at the same time. Explore the options below to get started!

Ways to Fundraise

2024 RFA Walk

Founded as Running for Answers by desmoid tumor patient Sera Snyder in 2009, RFA Walk is the annual DTRF signature fundraising event. 

Even though the in-person walk is over, keep the fun going by fundraising until October 31st! Start your own fundraising journey by registering for the virtual option and follow the steps to claim your fundraising page today. Once you register, you’ll get an email from the DTRF team with tips and tricks to help you fundraise for RFA.

Register Here

Create your own DTRF Fundraiser today.

Supporting the DTRF is easier than ever! View and/or download the DTRF Fundraising Toolkit to learn tips and tricks to help you organize a fundraiser with your family, friends, or community.

DTRF Fundraising Toolkit

Use the DTRF’s peer-to-peer fundraising page to easily create and share your online fundraiser via social media and email. To launch your fundraiser, click the button below and then click the teal “Become a Fundraiser” button to get started on your fundraising journey today. 

Launch Your Online Fundraiser

Facebook Fundraising

Facebook also makes it incredibly easy to fundraise for the DTRF. Just one click and you’ll be on your way to setting up your fundraiser. Then, start posting about it! But don’t just share the link, be sure to tell your story and/or share why this cause is important to you. For an added boost, email friends and family with your fundraising link. Birthdays, diagnosis anniversaries, and Desmoid Tumor Awareness Month (September) are great times to start a fundraiser on Facebook.

Start a Facebook Fundraiser

I was so surprised and humbled at the response I received from my Facebook community after posting the link to my DTRF fundraising page. So many friends and family members were eager to donate. But the humbling part came from seeing others…friends who I didn’t even realize followed my Facebook posts, friends who I didn’t think were even active on Facebook, reaching out and donating. It was really moving and so special!
Alicia R.
Patient & Fundraiser

It is the celebratory finale of the annual DTRF Together We Will Weekend. The desmoid tumor community and supporters gather to walk, run, and roll (wheelchairs welcome!) together as a unified force against desmoid tumors. RFA offers something for everyone; build a team, participate as an individual, create awareness, and help fundraise for a cure! RFA participants can also join to fundraise virtually from anywhere in the world.

Learn More

DIY (Do It Yourself) Fundraising

Fundraise

Your Way

Help

Your Way

Participate

Your Way

Christina K’s DTRF Fundraising Experience

You can support the DTRF anywhere, anytime and join a community united by a bold vision: a world without desmoid tumors. Hosting your own fundraising event is a great way to recruit your local community to support you on your desmoid tumor journey. When patients or caregivers share their experiences and the urgency of the DTRF’s mission through fundraising, they gain hope because they become part of the solution.

Get creative and innovative! You can do almost anything to raise money for desmoid tumor patients. Have fun coming up with your own fundraising idea. If you can dream it, you can do it to help empower, impact, and engage desmoid tumor patients!

How it works:

To get you started, take a look at our DTRF Fundraising Toolkit for ideas and fundraising tips. For additional support, contact Debbie Nathan, DTRF Development Director, at development@dtrf.org.

DIY Fundraising Highlights

Megan, a desmoid tumor patient advocate, ran her first half marathon and surpassed her fundraising goal with the help of friends and family!
DIY Fundraiser - over $5,000 raised
The 2024 Faith Over Fear fundraiser led by Gabe, a desmoid tumor patient advocate, and his family was a huge success! Gabe's community rallied around him and raised funds for the DTRF at his former high school's basketball game.
Faith Over Fear Fundraiser - $8,000 raised
In early May 2024, William, a desmoid tumor patient advocate, was joined by his parents, family, and friends for the 1st Annual WMK Classic in Winchester, Massachusetts, fundraiser benefiting the DTRF.
WMK Classic - $14,000 raised
In late April 2024, Mariela, a desmoid tumor patient advocate, fundraised to support the DTRF's mission! She was supported by her family and friends as she crossed the finish line in New York City's Central Park.
DIY Fundraiser - $5,000 raised
Basketball is life for Gabe, a high school senior and desmoid tumor patient. For the love of the game and desmoid research, he and his family hosted a basketball tournament at his school to raise funds for the DTRF.
Faith Over Fear Fundraiser - $17,200 raised
Jennifer’s daughters and a neighborhood friend decided to raise funds for the DTRF with a classic lemonade stand. The kids set up the stand right outside their house and raised over $100 for the DTRF!
DTRF Lemonade Stand - $100+ raised
Natalie was hoping to host a live fundraiser, but it was too much between chemo and a new baby. Instead, she designed a t-shirt and sold over 140 of them to friends and family.
Natalie’s T-shirt Campaign- $2,500 raised
Devonne hosted a Halloween party to remember - and to raise funds for the DTRF on behalf of her husband. Tickets were $30 per person and included drinks, a DJ, raffles, and costume prizes. No venue necessary - the party was hosted in Devonne’s own home!
Costume/Holiday Party for DTRF - $900+ raised
On the day after his first daughter was born, Jason learned that he had a large abdominal desmoid tumor. He and his wife now host an annual golf tournament to fundraise for a cure.
Swing For a Cure - St. Louis - $44,000+ raised
Amy and her friends donned unicorn costumes and rainbow wigs and took a stroll around their local lake. Participants made donations to the DTRF!
Unicorn Prance 5K - $1,000+ raised
Joe hosts an annual beach volleyball tournament around Halloween. He provides a silent auction, raffles and swag for all participants, and they dress up in fun costumes and bring their families.
JoeStrong Volleyball Tournament - $5,000+ raised

Corporate Fundraising

Join Our Community of Corporate Partners

The DTRF is honored to be working with passionate corporations in the country. These supporters are vital to helping us achieve our mission; to aggressively fund research to accelerate the development of improved therapies and ultimately find a cure for desmoid tumors. Together, we power innovative breakthrough research. Join us in making a meaningful difference in the lives of your staff, your customers, and the desmoid tumor community.

Ways to Partner

Corporate Giving

If you’re an employer, demonstrate your company’s commitment to cure desmoid tumors by making an investment in the DTRF’s mission. Partnering with the DTRF as a funder of our critical work is a powerful way to express your company’s social responsibility among staff, customers, and the desmoid tumor community.

Learn how corporate giving may benefit you by contacting us at development@dtrf.org.

Workplace Giving

Workplace giving is a unique concept that allows your employees the ability to make charitable donations directly from their paychecks. Contact us to add DTRF to your company’s donation portfolio.

To learn more, please contact us at development@dtrf.org.

Fundraising Events

Are you looking for ways to involve your employees in making an impact?

Learn more

Fundraising for Answers

Watch the DTRF Development Director, Debbie Nathan, discuss the importance of fundraising for spreading #DesmoidAwareness. Debbie also explains how the DTRF can offer support for community fundraisers.

In their own words...

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“I let others see these vulnerabilities and it brings them into the journey with me. And by sharing my story and some of my tears, and all of my pains, others come to understand how important the research is to me and to all of us. And they want to donate and they want to help us find a cure.”

Rachel S.

Virginia, US

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“The work that the DTRF is doing is so exciting and so encouraging that by being a fundraiser I’ve found it’s an arm of advocacy that makes me feel like I have some control over this disease in my life.”

Christina K.

New Jersey, US

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“Giving back through raising funds for the DTRF helped me find some purpose despite the many horrible facets of a desmoid tumor diagnosis.”

Meredith B.

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