The DTRF International Desmoid Tumor Research Workshop

Designed for researchers and medical professionals, the annual DTRF International Desmoid Tumor Research Workshop is a critically important, collaborative event bringing together some of the brightest minds in the field of desmoid tumors from a variety of disciplines. It presents the latest information on desmoid treatments and research, and facilitates new collaborations to move the science forward. The Workshop also helps us identify research priorities for the coming years. We are sincerely grateful to our attendees who play a key role in advancing the field.
The DTRF International Research Workshop features:
- Scientific talks on current research and treatment
- A forum to share research findings, develop new collaborations, bring new scientists into the desmoid tumor research field, and discuss innovations that will lead to new treatments
- Live questions/answers and discussions related to the scientific talks
- Group discussions focusing on gaps in desmoid tumor science and how best to address them through high impact collaborative research
The DTRF International Research Workshop is part of the DTRF Together We Will Weekend. In order to attend the Workshop, you need to register for the Weekend.

Hybrid
2023 DTRF International Research Workshop
Register for the DTRF Together We Will Weekend (and be sure to register separately for Sunday’s RFA 5K & Fun Run!)
Friday, September 22, 2023
11:00 am - 5:00 pm
Wyndham Philadelphia, Historic District
Philadelphia, Pennsylvania
2023 DTRF Patient Meeting Agenda
12:20 pm
Latest edition of the global management consensus from ‘The Desmoid Tumor Working Group’

Bernd Kasper, MD, PhD
Professor, University of Heidelberg
Mannheim University Medical Center, Mannheim Cancer Center, Sarcoma Unit (Germany)
1:00 pm
Desmoid Tumors 101/ Getting the most from your consultation and treatment plan

Candace Haddox, MD
Medical Oncologist
Dana-Farber Cancer Center
From our amazing community of supporters
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“This was my first DTRF [Research Workshop] and I was extremely impressed by the content and the enthusiasm of everyone there.”
Research Workshop Attendee
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“Thanks so much for all of your efforts, the meeting was truly fantastic and I made new connections which will help desmond research to move forward”
Research Workshop Attendee
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“The pool of people working on desmoid tumors is growing exponentially and it’s DTRF’s work that is making this happen.”
Research Workshop Attendee
Continue Exploring

Annual Weekend
Our annual DTRF Together We Will Weekend is a time for patients, family, and friends to connect with each other and participate in informative lectures and roundtables on desmoid tumors and race/walk in our Running for Answers 5K.

Join us in our mission to support our patient community and fund research.


DTRF Patient Meeting
Our Patient Meeting is a time to hear from clinicians, researchers, and desmoid patients and caregivers during our annual DTRF Together We Will Weekend.