Hybird
DTRF Int’l Research Workshop
To attend the Research Workshop, register for the DTRF Together We Will Weekend. In-person and virtual registration is available for the Workshop.
⭐ In-person Workshop attendees are encouraged to attend the Annual Patient Meeting on Saturday, Sept. 26th to connect with desmoid tumor patients and caregivers.
Note: To support open and candid discussion of clinical topics and emerging research, this session is intended for clinicians, researchers, and industry professionals. Please see additional sessions throughout the Weekend agenda that are open to all attendees.
Scroll down to view a list of our distinguished presenters and topics.
Designed for researchers and medical professionals, the annual DTRF International Desmoid Tumor Research Workshop is a critically important, collaborative event bringing together some of the brightest minds in the field of desmoid tumors from a variety of disciplines.
The Workshop presents the latest information on desmoid treatments and research, and facilitates new collaborations to move the science forward. It also helps us identify research priorities for the coming years. We are sincerely grateful to our attendees who play a key role in advancing the field.
Our 2026 Distinguished Presenters and Topics (More to follow)
"Mapping desmoid tumor progression and regression at single-cell resolution"
Mushriq Al-Jazrawe, PhD
Scientific Director, High Throughput Sciences
Koch Institute for Integrative Cancer Research at MIT
"Investigating the Molecular Characteristics Underlying Desmoid Tumor Clinical Trajectory"
Candace Haddox, MD
Medical Oncologist
Dana Farber Cancer institute
"RINGSIDE Phase 3 randomized, placebo-controlled trial of varegacestat for treatment of progressing desmoid tumors"
Mrinal Gounder, MD
Medical Oncologist
Memorial Sloan Kettering Cancer Center
"DTRF Patient Registry and Natural History Study Update"
Kelly Mercier, PhD
Principal Investigator, The DTRF Patient Registry & Natural History Study
The Desmoid Tumor Research Foundation,
"Efficacy of nirogacestat in improving sleep outcomes in adults with desmoid tumors: Post hoc analysis from the DeFi trial"
Bernd Kasper, MD, PhD
Professor
University of Heidelberg, Mannheim University Medical Center, Mannheim Cancer Center, Sarcoma Unit (Germany)
"Nirogacestat in Children and Adolescents with Progressive Desmoid Tumors - A Report from Children’s Oncology Group study ARST1921"
Fariba Navid, MD
Professor of Clinical Pediatrics
Children’s Hospital Los Angeles
"Long-term Data on Patients Study Update: Doxorubicin Eluting Embolization for Desmoid Fibromatosis"
Eldad Elnekave, MD
Interventional Radiology
Sha'are Tzedek Medical Center (Israel)
"To see the early effect of sorafenib on cognition, cardiovascular and reproductive functions in patients with fibromatosis"
Sameer Rastogi, MD
Professor, Medical Oncology
All India Institute of Medical Sciences (India)
"Trial in Progress – Phase 2 Study of Cryoablation and Nirogacestat for Desmoid Tumor"
Nam Quoc Bui, MD
Clinical Associate Professor
Stanford Cancer Institute
"Subtotal Percutaneous Cryoablation for Extra-Abdominal Desmoid Tumors"
Joseph G. Pressey, MD
Cancer & Blood Diseases Institute
Cincinnati Children’s Hospital Medical Center
"Understanding Real-World Patient Experiences With Nirogacestat for the Treatment of Desmoid Tumors"
Susan A. Scott, MSN
Sr. Director, Medical Research
SpringWorks Therapeutics, a healthcare company of Merck KGaA, Darmstadt, Germany
"Beyond RECIST: Assessing T2-Weighted MRI Modified-Choi Criteria and Volumetrics for Evaluation of Sorafenib versus Nirogacestat Treatment in Desmoid Fibromatosis"
Behrang Amini, MD, PhD
Department of Musculoskeletal Imaging
UT MD Anderson Cancer Center
"A follow-up study on the novel use of contrast-enhanced susceptibility-weighted imaging for extremity desmoid fibromatosis response assessment"
Meera Raghavan, MD
Associate Professor, Department of Musculoskeletal Imaging
UT MD Anderson Cancer Center
"Investigating the collagen network and its associated cellular ecosystem in experimental (Xenopus) and clinical desmoid tumors"
Kris Vleminckx, PhD
Ghent University
"FAP-associated Desmoid Tumor Management and Using Case Studies to Develop Decision-Making Guidance"
Dale R. Shepard, MD, PhD
Director of Global Oncology Partnerships
Cleveland Clinic Sarcoma Program
"Investigating immune mechanisms mediating tumor regression in patients with desmoid fibromatosis"
Chiara Colombo, MD
Fondazione IRCCS Istituto Nazionale dei Tumori
"Updates on Patients with Desmoid Tumors treated in the Phase 1 Clinical Trial of FOG-001/Zolucatetide"
Gregory Cote, MD, PhD
Medical Oncologist
Mass General Brigham Cancer Institute
"Magnetic resonance image-guided high intensity focused ultrasound for patients with desmoid-type fibromatosis: the MAGNIFIED trial"
Manon N.G.J.A. Braat, MD
Radiologist, Imaging Division, MS Radiology
University Medical Center Utrecht
The DTRF International Research Workshop features:
- Scientific talks on current research and treatment
- A forum to share research findings, develop new collaborations, bring new scientists into the desmoid tumor research field, and discuss innovations that will lead to new treatments
- Live questions/answers and discussions related to the scientific talks
- Moderated patient panel featuring several patients’ lived experiences
- Group discussions focusing on gaps in desmoid tumor science and how best to address them through high impact collaborative research
The DTRF International Research Workshop is part of the DTRF Together We Will Weekend. In order to attend the Workshop, you need to register for the Weekend.
