Get Involved - Desmoid Tumor Research Foundation

Get Involved

Create Your Own Fundraising Campaign

Fundraising Campaign

Whether you decide to raise funds for research on your own behalf, or a loved one’s, DTRF can help you create your own online fundraising or letter-writing campaign. This is a great way in joining DTRF in finding a cure.

Email Lynne at to get started!

Host a Fundraising Event

Become an advocate for desmoid tumor research by creating your own event! Whether it’s a run/ walk, gala or auction, you can contribute greatly to the Foundation’s progress. Here are some ideas of past events hosted by community members.

Contact for more information!

Encourage Company Donations

Company donations

Please let your employer know about the DTRF. Encouraging your company to make a corporate donation to DTRF may be easier than you think.

Make a Tax-deductible Donation

Tax Deductions

Your financial support is the only way we can accomplish the goal of new treatments.  Together we will find a cure. Donate here.

Donate Tissue

Donate Tissue

Researchers are in desperate need of newly-resected desmoid tumor tissues.  By reaching out prior to surgery, you can help support research efforts. Visit here for more information.

Support an Event

Support an Event

Join a DTRF event, or start one of your own!  You can make a difference as an advocate for a cure. See Upcoming EventsPast Events, Plan Your Own Event.

Join a Clinical Trial

Join a Clinical Trial

If your physician recommends it and you qualify, your participation in a clinical trial will help advance science at the same time as receiving treatment. For more information, visit here.

Other Ways to Support DTRF

blue ribbon

You can help support desmoid tumor research by obtaining your employer’s matching gift or sponsorship of an event, donate securities, create planned or deferred gifts. Learn about different ways to donate here.