Donate Excess Tumor Tissue From an Upcoming Surgery
Since surgeries are no longer a front-line treatment for most desmoid tumors, they have become less frequent. When surgeries are appropriate, fresh desmoid tissue samples can be collected for research. To facilitate this collection, the DTRF Partners with the Rare Cancer Research Foundation’s initiative: Pattern.org.
Your fresh desmoid tumor tissue sample could hold the key to unlocking new discoveries about what drives desmoid tumors. With your prior online consent through Pattern.org, a small amount of excess tissue from your surgery will be collected and sent to a key research partner such as the Boehm Lab at the Koch Institute of MIT. This enables researchers to learn more about desmoid tumors, pilot new technologies and develop potential treatments.
If you’re planning to have surgery, please sign up with our tissue collection partner, Pattern.org, today.
Importance of Rare Cancer Tissue Donation
Dr. Jesse Boehm discusses tissue donation through Pattern.org
How to Donate Tissue
Simply complete an online consent form prior to surgery at Pattern.org, and they will handle all the arrangements, working with your surgical institution. There is no cost or any additional effort on your part to participate. Due to several regulatory issues involved with living tissue across the border, currently, Pattern.org can only accept tissue from the contiguous United States.
As always, thank you to those within our community who are willing and able to support this exciting research initiative.
Please feel free to reach out to us at info@dtrf.org with any questions.
How Pattern.org Works
Watch Barbara Van Hare, President of Pattern.org, share how Pattern.org is revolutionizing the way rare cancer patients can directly donate their excess tumor tissue or fluid to research at no cost.
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