Terms of Use - Desmoid Tumor Research Foundation

Terms of Use

Welcome to our website, sponsored by the Desmoid Tumor Research Foundation (DTRF). By using this website you agree that you have read and accept the following agreement, and acknowledge the purposes and limitations of the information we provide.

The uses of the name “DTRF,” or the words “we” or “our,” include the Desmoid Tumor Research Foundation, Inc., its directors and advisory boards, its website contributors, and DTRF.ORG.


All the information and services made available throughout this site are provided as a service to our visitors and are intended solely to provide information for your reference only. Nothing in this site is intended as medical or health care advice for any individual problem, or as a diagnosis, treatment plan, or recommendation for a particular course of action. This site should not be used as a substitute for medical or other professional advice and services. Do not delay in obtaining medical advice from your doctor or other qualified health care provider because of something you have read on this site.

While we strive to publish only information that is accurate, complete, and up to date, we cannot guarantee, and we disclaim any liability for damage or loss related to, the accuracy, completeness, or timeliness of any information contained on this site.


The use of this website and its content is at your own risk. By using this site you waive any claims against us for loss or damage you sustain in connection with your use of the website. You understand that the site would not be provided to you without those limitations.

We are not liable for the independent actions of others who use the DTRF name, whether for educational, fundraising, or other actions or events.

We have hyperlinks to other websites that are not under our control. We are not responsible for the contents of any linked site, any link contained in a linked site, or any changes or updates to those sites. They are provided for your reference convenience only. The inclusion of any link does not imply our endorsement of that site. It is up to you to evaluate the accuracy of any information you obtain from a linked site, and your use of any linked site is solely at your own risk.


The names of The Desmoid Tumor Research Foundation shall not be used in any way without written permission.

All original material on DTRF.ORG is protected by the United States and foreign copyright laws. In addition to original content, the site also contains or links to material owned by third parties and protected by copyright and other laws. Copies of our own material may be made only for your own personal, non-commercial use, and all materials remain our property.


There are hyperlinks throughout www.dtrf.org to other related sites which are not under the control of DTRF. We do not guarantee that hyperlinks or files available for downloading through our site or hyperlinked sites will be free of viruses, worms, Trojan horses, or other code that contains contaminating or destructive properties. We do not guarantee against errors, or losses, including loss of data. You are responsible for maintaining protection against viruses and a means to reconstruct lost data. DTRF is not responsible for the privacy practices of web sites hyperlinked or listed as resources on its site. It is your responsibility to review the privacy policy and user conditions of any other web site referred to herein.


When you use the site you represent that you are at least 18 years of age, or have a parent or guardian’s permission to use it.


Any modification made to this agreement will be effective as soon as it is posted on the site. Your accessing this site means you accept this agreement as well as any modified agreement.


You agree that any legal action, suit, or proceeding arising out of or relating to this agreement shall be instituted in the Stamford/Norwalk Judicial District in Connecticut. You consent to submit to personal jurisdiction of this court and waive any objection to venue there. You consent to service of process by overnight courier or express mail at your last known address, or by email if we have no other valid address.

This agreement shall be governed by the laws of the State of Connecticut regardless of where DTRF.ORG is viewed and regardless of where the questionnaire is completed.

Because of the educational purpose of this site and the services it provides, you agree that DTRF.ORG does not constitute “doing business” in any specific jurisdiction or establishing “minimum contacts” with any jurisdiction outside of the State of Connecticut.

Our failure to insist upon strict enforcement of any provision of this agreement shall not be construed as a waiver of any provision or right. If any of the provisions of this agreement are held to be unenforceable, then the elimination of those provisions shall not affect the validity or enforceability of any other provision.

This agreement constitutes the entire agreement between you and us relating to the access and use of the site and any of its services. This agreement may not be modified, in whole or in part, except as described elsewhere in the agreement. Anything contained on the website inconsistent with or conflicting with the terms of this agreement is superseded by the terms of the agreement.