The Desmoid Tumor Research Foundation

Running for Answers/RFA 5K is Founded by Desmoid Patient Sera Snyder in Philadelphia

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This evolves into the DTRF’s largest annual signature fundraiser celebrating the desmoid community while raising research dollars

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Just outside of NYC, ~30 people attend the meeting where 1 doctor speaks. Today, the DTRF’s annual Patient Meeting attracts hundreds who hear from a slate of experts from top research institutions in the U.S. and around the world.

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This would eventually grow into raising millions of dollars to fund dozens of grants at top sarcoma research institutions around the world over our history.

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The DTRF is founded as a labor of love to fund research and find answers for the desmoid tumor community. Fundraising begins upon obtaining 501(c)(3) status.

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