The Desmoid Tumor Research Foundation

About DTRF

Our Team

The Desmoid Tumor Research Foundation’s critical work is powered by staff and volunteers who will stop at nothing to find more treatments and ultimately, a cure for desmoid tumors.

Join Our Team

Become a part of our daring and strong-willed team.

Join Our Team

Our Team

Jeanne Whiting, J.D.

Co-Founder/Grant Advisor

Read Jeanne Whiting, J.D.'s Bio

Marlene Portnoy

Co-Founder/Special Projects/DTRF Board President

Read Marlene Portnoy's Bio

Lynne Hernandez

Lynne Hernandez

Executive Director

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Debbie Nathan

Development Director

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Kelly Mercier, PhD

Principal Investigator, The DTRF Patient Registry & Natural History Study

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Mrinal Gounder, MD

Scientific Director

Read Mrinal Gounder, MD's Bio

Amanda L. Lucas

Registry Administrator, The DTRF Patient Registry & Natural History Study

Read Amanda L. Lucas's Bio

Shannon Shoop

Operations Manager

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Chaney Pope

Communications Manager

Read Chaney Pope's Bio