Join DTRF's 2021 "Together We Will" Virtual Weekend

DTRF's September Virtual Weekend


The Desmoid Tumor Research Foundation is pleased to announce that, once again, we are taking our annual September events online.

We invite our global community of patients, caregivers, and medical professionals to join us for our 2021 Together We Will Virtual Weekend and RFA Virtual Challenge to learn, connect, advance research, and fund a cure. There is no cost to participate, however, we encourage our patient community to fundraise to support research efforts.

Thank you in advance, and we look forward to gathering virtually with you this fall!

Register below.

Event Registration

Medical Professionals ONLY

International Research Workshop
Fri., Sept. 24, 10:30am- 3:30pm ET

NOTE: Please look for information to be sent about the Patient Meeting Webinars, which Workshop attendees are invited to join.



Patient Meeting Webinars
Sat., Sept. 25, Start times are 11:00am ET & 1:30pm ET


RFA Virtual Challenge Fundraiser
Kicking off June 7, ending in virtual ceremony, Sun., Sept. 26

NOTE: After registering, check your inbox for 1) an event confirmation, and 2) info on claiming your RFA fundraising page. Questions? Email


Fall Community Virtual Networking Event
Fri., Sept. 24, 7:30- 9pm ET

NOTE: After registering, check your inbox for a confirmation email. Questions? Email


Together We Will Virtual Weekend
Event Schedule/Information

Medical Professionals ONLY

Friday, Sept 24th, 10:30am- 3:30pm ET

8th Annual DTRF International Desmoid Tumor Research Workshop

“ONLY* for medical professionals, this critically important, collaborative event is a meeting of some of the brightest minds in desmoid tumor research from a variety of disciplines. Workshop participants will also be invited to attend the Patient Meeting Webinars on Sat., Sept. 25th. Together we will ADVANCE RESEARCH.

Patients/ Caregivers

June 7th to September 26th

The RFA Virtual Challenge

We need the patient and caregiver community to take the #RFAVirtualChallenge! Join our easy and fun summer-long fundraising extravaganza to raise funds for desmoid tumor research. Together we will FUND A CURE.

Friday, Sept 24th, 7:30-9:00pm ET

Fall Community Virtual Networking Event

A 90 minute structured networking event for patients and caregivers to see and hear each other, live! Together we will CONNECT.

Saturday, Sept 25th

DTRF Annual Patient Meeting Webinars 1 & 2 (11am ET & 1:30pm ET)

Distinguished physicians and researchers, as well as patients, will present over the course of two, back-to-back webinars, each with a designated focus area, with time for Q&A. Together we will EMPOWER OURSELVES.

Sunday, Sept 26th, 11:00am ET

RFA Virtual Challenge Ceremony

The grand finale of the Weekend and the #RFAVirtualChallenge, complete with awards, patient and team spotlights, and uplifting celebration of our community. Together we will FUND A CURE.


Learn more about previous September event weekends below.