Hybrid
2024 DTRF International Research Workshop
Designed for researchers and medical professionals, the annual DTRF International Desmoid Tumor Research Workshop is a critically important, collaborative event that brings together some of the brightest minds in the field of desmoid tumors from various disciplines.
It presents the latest information on desmoid treatments and research and facilitates new collaborations to advance the science. The Workshop also helps us identify research priorities for the coming years. We are sincerely grateful to our attendees, who play a key role in advancing the field.
Register for the DTRF Together We Will Weekend. Be sure to register separately for Sunday’s RFA Walk at the Houston Zoo.
Friday, September 20, 2024
11:00 am - 5:00 pm
Houston Marriott Medical Center/Museum District
Houston, Texas
Scroll down to view the 2024 Int'l Research Workshop presenters and submitted abstracts.
Our 2024 Distinguished Presenters and Topics (More to follow)
“Active Surveillance.”
Chiara Colombo, MD
Surgical Oncology
Fondazione IRCCS Istituto Nazionale dei Tumori di Milano, Italy
“Cellular heterogeneity"
![](https://dtrf.org/wp-content/uploads/2023/09/Alman-Ben-Advisory-Boards-400x400.jpeg)
Ben Alman, MD
Department Chair, Orthopedic Surgery
Duke University
“To see the early effect of sorafenib on cognition, cardiovascular and reproductive functions in patients with fibromatosis.”
![](https://dtrf.org/wp-content/uploads/2023/09/Rastogi-Sameer_DTRF-Grant-Award-400x400.jpg)
Sameer Rastogi, MD
Assistant Professor
All India Institute of Medical Sciences (India)
“Update on Progress Towards Creating a Prototype Desmoid Tumor Dependency Map.”
![](https://dtrf.org/wp-content/uploads/2023/09/Boehm-Jesse_DTRF-Grant-Award-400x400.png)
Jesse Boehm, PhD
Principal Investigator
Koch Institute, MIT
"Multiomic profiling uncovers integral immune molecules that drive the pathogenic fibroblast milieu in desmoid tumors"
![](https://dtrf.org/wp-content/uploads/2023/09/DeSouza-Cristabelle_DTRF-Grant-Award-400x400.jpg)
Cristabelle De Souza, PhD
Postdoctoral Fellow
Stanford University
“Magnetic resonance image-guided high intensity focused ultrasound for patients with desmoid-type fibromatosis: the MAGNIFIED trial.”
![](https://dtrf.org/wp-content/uploads/2023/09/stefanie_headshot-400x400.jpg)
Stefanie Hakkesteegt
PhD Candidate
Erasmus University Rotterdam, Netherlands
"Therapeutic targeting of the hexosamine biosynthesis pathway in desmoid tumors"
![](https://dtrf.org/wp-content/uploads/2023/09/Przybyl-Joanna_DTRF-Grant-Award-400x400.jpg)
Joanna Przybyl, PhD
Assistant Professor
McGill University, Canada
“Efficacy and safety of auranofin for progressive desmoid-type fibromatosis: an open-label phase II trial.”
![](https://dtrf.org/wp-content/uploads/2023/09/Nishida-photo-400x400.jpg)
Yoshihiro Nishida, MD
Department of Rehabilitation Medicine, Orthopaedic Surgery
Nagoya University Hospital, Japan
"The Role of Surgery in FAP associated Desmoid Disease: From Prevention to Intestinal Transplant"
![](https://dtrf.org/wp-content/uploads/2023/09/Liska-headshot-2024-400x400.jpg)
David Liska
MD, MA, FACS, FASCRS, Chair, Department of Colorectal Surgery
Sanford R. Weiss Center for Hereditary Colorectal Neoplasia, Digestive Disease Institute, Cleveland Clinic, Cleveland, OH
“Immune modulation.”
Chiara Colombo, MD
Surgical Oncology
Fondazione IRCCS Istituto Nazionale dei Tumori di Milano, Italy
“DTRF Natural History Study Updates.”
Amanda Lucas
Associate
DTRF Patient Registry & Natural History Study
Potential 2024 Int’l Research Workshop Abstracts
“Impact of nirogacestat on patient-reported outcomes in adults with desmoid tumor with a best overall response of stable disease: post hoc analysis from the DeFi study”
“Impact of Pain on Physical and Role Functioning in Adult Patients with Desmoid Tumors Treated with Nirogacestat”
“Efficacy of nirogacestat in patients with poor prognostic factors for desmoid tumors: Analyses from the randomized phase 3 DeFi study”
![](https://dtrf.org/wp-content/uploads/2023/09/DTRF-RW-2019-2.jpg)
Designed for researchers and medical professionals, the annual DTRF International Desmoid Tumor Research Workshop is a critically important, collaborative event bringing together some of the brightest minds in the field of desmoid tumors from a variety of disciplines. It presents the latest information on desmoid treatments and research, and facilitates new collaborations to move the science forward. The Workshop also helps us identify research priorities for the coming years. We are sincerely grateful to our attendees who play a key role in advancing the field.
The DTRF International Research Workshop features:
- Scientific talks on current research and treatment
- A forum to share research findings, develop new collaborations, bring new scientists into the desmoid tumor research field, and discuss innovations that will lead to new treatments
- Live questions/answers and discussions related to the scientific talks
- Group discussions focusing on gaps in desmoid tumor science and how best to address them through high impact collaborative research
The DTRF International Research Workshop is part of the DTRF Together We Will Weekend. In order to attend the Workshop, you need to register for the Weekend.
![](https://dtrf.org/wp-content/uploads/2023/09/Alman-Ben-Research-Workshop.jpg)
From our amazing community of supporters
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“This was my first DTRF [Research Workshop] and I was extremely impressed by the content and the enthusiasm of everyone there.”
Research Workshop Attendee
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“Thanks so much for all of your efforts, the meeting was truly fantastic and I made new connections which will help desmond research to move forward”
Research Workshop Attendee
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“The pool of people working on desmoid tumors is growing exponentially and it’s DTRF’s work that is making this happen.”
Research Workshop Attendee
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Annual Weekend
Our annual DTRF Together We Will Weekend is a time for patients, family, and friends to connect with each other and participate in informative lectures and roundtables on desmoid tumors and race/walk in our Running for Answers 5K.
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Join us in our mission to support our patient community and fund research.
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DTRF Patient Meeting
Our Patient Meeting is a time to hear from clinicians, researchers, and desmoid patients and caregivers during our annual DTRF Together We Will Weekend.