Faith Over Fear Fundraiser

RFA Virtual Challenge

CanÕt make it to the RFA 5K& Fun Run? The RFA Virtual Challenge provides an opportunity to fundraise virtually for desmoid tumor research. We encourage you to become an RFA ÒChallengerÓ and choose your own unique way to work towards a fundraising goal. This virtual campaign culminates in a LIVE online ceremony days after the […]

DTRF Int’l Research Workshop (DTRF Together We Will Weekend event)

Wyndham Philadelphia Historic District 400 Arch St, Philadelphia, PA, United States

Designed for researchers and medical professionals, the annual DTRF International Desmoid Tumor Research Workshop is a critically important, collaborative event bringing together some of the brightest minds in the field of desmoid tumors from a variety of disciplines. It presents the latest information on desmoid treatments and research, and facilitates new collaborations to move the […]

DTRF Patient Meeting (DTRF Together We Will Weekend event)

Wyndham Philadelphia Historic District 400 Arch St, Philadelphia, PA, United States

Founded in 2007, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend. The meeting includes educational presentations by clinicians and researchers, with questions from the audience, as well as a talk by a desmoid patient. Content is geared toward topics of interest to our patient and […]

DTRF Community Networking Event (DTRF Together We Will Weekend event)

Wyndham Philadelphia Historic District 400 Arch St, Philadelphia, PA, United States

Community connections can be transformative and are essential to the patient and caregiver journey. Our Community Networking Event is a wonderful opportunity to have one-on-one, real-time conversations with fellow patients and caregivers. The event is structured to provide a natural way to get to know attendees and share experiences by connecting in small groups in […]

RFA 5K & Fun Fun

Fairmount Park 4231 Avenue of the Republic, Philadelphia, PA, United States

The RFA 5K & Fun Run, founded by desmoid tumor patient Sera Snyder in 2010, is our annual signature fundraising event and the celebratory finale of the annual DTRF Together […]

Swing For A Cure – St. Louis

The Ortwerth family invites you to the 5th Annual Swing For A Cure - St. Louis to raise funds for desmoid tumor research!

Faith Over Fear Fundraiser

West Catholic High School 801 Bristol Ave NW, Grand Rapids, MI, United States

If you are in the Grand Rapids area, come join Gabe and his local high school as they raise awareness and funds for the DTRF! Free Throw Contest @ Half-time. […]