If you’ve been diagnosed with a desmoid tumor, please know that you are not alone.
The mission of The Desmoid Tumor Research Foundation is to aggressively fund research to accelerate the development of improved therapies, and ultimately find a cure for desmoid tumors. We collaborate with dedicated researchers and clinicians worldwide to improve the lives of patients through education, awareness, and support.
Here are important first steps for you in dealing with this new diagnosis:

1- Find a desmoid tumor (sarcoma) specialist.

2- Learn as much as you can about desmoid tumors to ensure that you get the best care possible. YOU are your best advocate.

3- Receive regular updates about the latest research findings, clinical trials, and DTRF activities.

4- Help advance desmoid tumor research by participating in our patient registry.

5- Get connected.

6- Save the date!

Do you live in outside of the U.S.? Read more about our partners here.