The Desmoid Tumor Research Foundation

Patients & Caregivers

2022 DTRF Patient Meeting

Agenda

"Desmoid Tumors 101" with Dr. Seth Pollack - 2022 DTRF Patient Meeting, Webinar 1

“Desmoid Tumors 101” 

with Dr. Seth Pollack, Northwestern University - 2022 DTRF Patient Meeting Webinar #1

"Tissue Donation" with Barbara Van Hare, Rare Cancer Research Foundation - DTRF Patient Meeting Webinar #1

“Tissue Donation” 

with Barbara Van Hare, Rare Cancer Research Foundation - 2022 DTRF Patient Meeting Webinar #1

"DTRF Patient Registry" with Kelly Mercier, PhD - DTRF Patient Meeting Webinar #1

“Sharing Your Desmoid Journey – The DTRF Patient Registry” 

with Kelly Mercier, PhD - 2022 DTRF Patient Meeting Webinar #1

"A Patient's View" with Caregiver Bill Lundgren - DTRF Patient Meeting Webinar #1

“A Patient’s View” 

with Caregiver Bill Lundgren - 2022 DTRF Patient Meeting Webinar #1

"Nirogacestat" with Dr. Ravin Ratan, MD Anderson - DTRF Patient Meeting Webinar #2

“Nirogacestat” 

with Dr. Ravin Ratan, MD Anderson - 2022 DTRF Patient Meeting Webinar #2

"AL102" with Dr. Mark Agulnik, City of Hope - DTRF Patient Meeting Webinar #2

“AL102” 

with Dr. Mark Agulnik, City of Hope - 2022 DTRF Patient Meeting Webinar #2

"Cryoablation and HiFU" with Dr. Joseph Erinjeri, Memorial Sloan Kettering - DTRF Patient Meeting Webinar #2

“Cryoablation and HiFU” 

with Dr. Joseph Erinjeri, Memorial Sloan Kettering - 2022 DTRF Patient Meeting Webinar #2

"Mock Tumor Board" with UPMC Experts - DTRF Patient Meeting Webinar #2

“Mock Tumor Board” 

with UPMC Experts - 2022 DTRF Patient Meeting Webinar #2

"FAP and Medical Therapies" with Dr. Dale Shepard, Cleveland Clinic - DTRF Patient Meeting Webinar #3

“FAP and Medical Therapies” 

with Dr. Dale Shepard, Cleveland Clinic - 2022 DTRF Patient Meeting Webinar #3

"FAP-Associated Desmoids and Surgery" with Dr. Joshua Sommavilla, Cleveland Clinic - DTRF Patient Meeting Webinar #3

“FAP-Associated Desmoids and Surgery” 

with Dr. Joshua Sommavilla, Cleveland Clinic - 2022 DTRF Patient Meeting Webinar #3

"FAP and Mental Health" with Dr. Karen Hurley - DTRF Patient Meeting Webinar #3

“FAP and Mental Health” 

with Dr. Karen Hurley, Cleveland Clinic - 2022 DTRF Patient Meeting Webinar #3