2024 Patient Meeting

“Reproductive/ Fertility Considerations: Important things to know”

with Laurie J. McKenzie, MD

“Learning in the basics: Desmoid Tumors 101”

with Thierry Alcindor, MD, MSc

“Active Surveillance: An accepted first-line treatment in most desmoid tumor cases”

with Chiara Colombo, MD

“An Update on the DTRF Natural History Study – September 2024”

with Kelly Mercier, PhD

“Impact of pain on physical and role functioning in adult patients with desmoid tumors treated with nirogacestat/Impact of nirogacestat on patient-reported outcomes in adults with desmoid tumor with a best overall response of stable disease: post hoc analysis from the DeFi study”

with Ravin Ratan, MD

“Cryoablation as a desmoid tumor treatment option”

with Andrea Vanzulli, MD

Megan Barrell’s Journey with a Desmoid Tumor

DTRF Multi-Disciplinary Mock Tumor Board

Featuring a interdisciplinary panel of clinicians

“Short and long term side effect considerations of current therapies in the pediatric population”

with Aaron Weiss, DO

Survivorship Panel with a focus on AYA (Adolescents and Young Adults): “What happens next?”

Featuring MD Anderson Cancer Center