Dealing with and living with a desmoid tumor or supporting a loved one through it can be challenging.
Explore the resources below to help support your mental health.
If you are in crisis, call the U.S. National Suicide & Crisis Lifeline by dialing 988.
For international hotlines, go here.
Mental Health Resources for Patients
DTRF Presents: “Dealing with Desmoids: Mental Health Tools for the Desmoid Tumor Patient” Webinar Series
The impact of a desmoid diagnosis can reach beyond just the physical challenges. Some patients can experience mental and emotional hurdles as well. Facilitated by a Licensed Clinical Social Worker (LCSW) and desmoid tumor patient, our mental health series dives into the unique experience of a desmoid tumor patient and provides mental health education, tools, and strategies for coping with the emotional challenges of this diagnosis. All “Dealing with Desmoids” programs are recorded and accessible on the program page.
DTRF Presents: “5 Mental Health Strategies for Desmoid Tumor Patients” with Licensed Clinical Social Worker and Desmoid Patient Ashley Williams”
During Desmoid Tumor Awareness Month 2022, DTRF asked Ashley Williams (facilitator of our “Dealing with Desmoids” series) to share 5 strategies for helping relax muscle tension and regulate the nervous system. Watch to learn the “how to” and benefits of ESHY, box breathing, “the wet noodle”, therapeutic journaling, and finding and enhancing your support system. We’d like to thank Ayala Pharmaceuticals for making this session possible.
DTRF Presents: “An Integrative Approach to Health and Well-Being” with desmoid tumor patient Jessica Clark, RN, BSN
Using Duke University Health System’s Wheel of Health, Jessica explores how viewing health through an integrative, holistic lens can improve a person’s overall well-being.
Align Integrative Health, and Jessica Clark, offers a free hour of integrative health coaching to fellow “desmoidians.” Contact her at jessie@alignintegrativehealth.com.
DTRF Presents: F.A.P. Webinar – “Building Resilience: Psychosocial Issues in Desmoid Disease” presented by Karen Hurley, PhD, Clinical Psychologist, Center for Adult Behavioral Health, Neurological Institute, Cleveland Clinic (2022 Patient Meeting)
“Desmoid Tumor Patient Support Group Series & Retreats”
(The Desmoid Project)
“Managing Mental Health After a Cancer Diagnosis”
(Georgetown University’s School of Nursing)
Stupid Cancer’s Mental Health Resources for Adolescents and Young Adults (AYAs) with Cancer
(Stupid Cancer)
