In the past, we have held in-person Patient Education Events (previously Regional Patient Meetings) in Salt Lake City and San Francisco. The format of these events is similar to that of our annual September DTRF Annual Patient Meeting where those experienced in the field of desmoid tumors present to local patient and caregiver community members.
Going forward, we hope to host other Patient Education Events in the U.S. to complement our annual meeting. If you are interested in either hosting or sponsoring a regional patient meeting, please contact us at info@dtrf.org.
Sign up for The DTRF Newsletter to be notified about any future Regional Patient Meetings
Upcoming Patient Education Event:
Navigating Your Desmoid Tumor Diagnosis
A 1/2 day patient education and networking opportunity
Join us on February 8th at Pennsylvania Hospital’s Zubrow Auditorium in Center City Philadelphia for an opportunity to connect with and learn from other desmoid tumor patients and Penn Medicine clinicians. Included will be educational talks, a patient panel, and an opportunity to meet other patients.
Past Regional Patient Meetings
Past Annual Patient Meeting Presentations
Knowledge is power and critical to making informed treatment decisions. For your convenience, you can watch certain presentations and read transcripts from our previous Annual Patient Meetings.
*Information and guidance can change quickly. Always talk with your provider about research and treatment options to ensure you have the latest information.*
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The DTRF Newsletter
Join the DTRF community! We carefully curate our bi-weekly newsletter to highlight upcoming events, the latest desmoid tumor progress, research updates, and patient care advances!
DTRF Patient Meeting
Our Patient Meeting is a time to hear from clinicians, researchers, and desmoid patients and caregivers during our annual DTRF Together We Will Weekend.
