The Desmoid Tumor Research Foundation (DTRF) believes in the power of in-person education to inform and connect the desmoid tumor community.
Living with Desmoid Tumors: A DTRF Education Experience is a one day, in-person event designed for patients and caregivers seeking trusted information about desmoid tumors and connection with a community that understands their lived experiences.
Save-the-date for our next event on Saturday, April 25, 2026 in Columbus, Ohio. Scroll down to learn more about why you should attend this special experience. Event registration coming soon!
Living with Desmoid Tumors: A DTRF Patient Education Experience
This event is designed with YOU in mind. Every session of this special, one day event is purposefully curated to inform, empower, and connect desmoid tumor patients and caregivers. Expert clinicians provide insight and guidance in an accessible, patient-centered way that supports real-life decision making.
This event is designed for every stage of the desmoid journey, from newly diagnosed patients to long term survivors, offering a shared space for patients and caregivers to learn together.
- You’ll hear presentations from clinical experts that will translate complex research and practice into understandable, actionable insights.
- Knowledge is power. Staying educated helps reduce fear and uncertainty after diagnosis, during treatment, and post-treatment management/monitoring/surveillance, etc.
- Take time to connect with patients, caregivers, and clinicians in a comforting, non-clinical environment.
- Learn more about how you can get involved in ongoing DTRF programs and fundraising opportunities.
Event registration, location and more details are coming soon!
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Past Patient Education Events:
Sign up for The DTRF Newsletter to be notified about any future events.
If you are interested in either hosting or sponsoring patient education event, please contact us at info@dtrf.org.
Past Regional Patient Meetings
Past Annual Patient Meeting Presentations
Knowledge is power and critical to making informed treatment decisions. For your convenience, you can watch certain presentations and read transcripts from our previous Annual Patient Meetings.
*Information and guidance can change quickly. Always talk with your provider about research and treatment options to ensure you have the latest information.*
Continue Exploring
The DTRF Newsletter
Join the DTRF community! We carefully curate our bi-weekly newsletter to highlight upcoming events, the latest desmoid tumor progress, research updates, and patient care advances!
DTRF Patient Meeting
Our Patient Meeting is a time to hear from clinicians, researchers, and desmoid patients and caregivers during our annual DTRF Together We Will Weekend.
