The Desmoid Tumor Research Foundation

Tissue Donation Section

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Since surgeries in desmoid tumors have become less frequent, there is an increased need for fresh desmoid tissue samples for research. To donate, patients must complete an online consent form prior to surgery at Pattern.org.

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Our annual DTRF Together We Will Weekend is a time for patients, family, and friends to connect with each other and participate in informative lectures and roundtables on desmoid tumors and race/walk in our Running for Answers 5K.

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Looking for something you haven’t found? Let’s connect.

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This first-of-its-kind scientific paper answers critical questions regarding treatments and pain management.

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Taking action and fundraising for desmoid tumor research can be a fulfilling and rewarding experience.

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Join the DTRF community! We carefully curate our bi-weekly newsletter to highlight upcoming events, the latest desmoid tumor progress, research updates, and patient care advances!