Submit Your Story for Desmoid Tumor Awareness Month - Desmoid Tumor Research Foundation
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Submit Your Story for Desmoid Tumor Awareness Month

 

September is Desmoid Tumor Awareness Month!

Will you help us raise #DesmoidAwareness by submitting your story?

 

Following the guidelines for each field below, tell us about your journey as a patient or caregiver with desmoid tumors and upload a photo, or you may upload a 1 minute video. We may share your story on our public channels in September (and/or beyond) to help raise awareness!

 

*Please Note: By submitting your story to The DTRF, you are agreeing to having your story and image shared on the public channels of DTRF and its partners. You accept any unintended consequences of this publicity. Not all stories will be featured in September, however, they may still be featured at a later time.*

 

Thank you for contributing your story! You will receive an email confirming its receipt.

 

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About Desmoid Tumor Awareness Month:

Desmoid Tumor Awareness Month was originally founded in 2016 by Desmoid Survivor, Angela F.. Seeking to raise awareness about this rare disease, Angela launched a Facebook page in September to publicly feature patients’ video stories and raise funds for desmoid tumor research. We are grateful to Angela, and all of the patients and caregivers who took the time and energy to participate and share their stories.

In September 2019, The Desmoid Tumor Research Foundation began building upon the work of our community by initiating a worldwide annual campaign to create awareness for desmoid tumors. Every September, DTRF and the patient and caregiver community will celebrate Desmoid Tumor Awareness Month. Wherever you are on the globe, we encourage you to participate and help us raise #DesmoidAwareness! To share your story, and learn about other ways to celebrate, educate, and raise funds for a cure this September, please visit DTRF.org/awareness.

 

Why September?

September is the natural choice for Desmoid Tumor Awareness Month, as it’s the month DTRF hosts its largest annual event weekend, the DTRF’s 2020 Together We Will Virtual Weekend and RFA Virtual Challenge (modeled after the Foundation’s in-person event weekend including the DTRF Annual Patient Meeting and the DTRF Running for Answers 5K). This signature weekend, which has been taking place for more than a decade, is part of the fabric of the desmoid tumor patient and caregiver community. It provides essential education and joyous celebration of the progress we’ve made, while raising critical funds for desmoid tumor research. 

 

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