The Desmoid Tumor Research Foundation

Video Library

Education, Research and Events

The Desmoid Tumor Research Foundation’s (DTRF) commitment to education, research and awareness is evident in our extensive Video Library. Use the search and filter tools to explore our impact.

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“Medical Treatments” | “Cryoablation” | “AL102 Phase 2/3 Trial” | “Int’l Pregnancy Study”

2021 DTRF Patient Meeting Webinar #1

“An Overview of Medical Desmoid Tumor Treatments” 

with Dr. Bernd Kasper, Mannheim University Medical Center, Germany - DTRF Patient Meeting Webinar #1

Watch Dr. Bernd Kasper, one of the authors of the Global Consensus Paper, discuss an overview of medical desmoid tumor treatments during our 2021 Patient Meeting.

“Clinical Trial Experience” | “Compassionate Use” | “Medical Assistance from Pharma Companies”

2021 DTRF Patient Meeting Webinar #2

“Learning about the Clinical Trial Experience” 

with Dr. Rashmi Chugh, University of Michigan, & Jon Fields, a Clinical Trial Participant - DTRF Patient Meeting Webinar #2

“Learning about Compassionate Use” 

with Dr. Ravin Ratan, MD Anderson Cancer Center & Amanda Hoffman, a beneficiary of Expanded Access (aka: Compassionate Use) - DTRF Patient Meeting Webinar #2

“Diagnostic and therapeutic strategies for extra-abdominal desmoid-type fibromatosis: a longitudinal questionnaire survey to specialized centers in Japan” 

with Yoshihiro Nishida, MD, Rehabilitation & Orthopedic Oncology, Nagoya University Graduate School of Medicine (2021 DTRF Research Workshop)