It is with full hearts that we share with you today that Marlene Portnoy, the DTRF’s Co-Founder and Executive Director, will be transitioning her role within the Foundation.

In February, Marlene will become a major gifts officer and board member where she will continue to support the financial health and future of the Foundation. The role of Executive Director will pass to her co-leader and partner in this journey, the DTRF’s Co-Founder and President, Jeanne Whiting.

After 16 years of tireless work that has helped the DTRF transform the landscape for desmoid tumor patients and their families, Marlene will begin a new and exciting chapter in her life. This change in roles will allow her to spend more time with her husband and their children and grandchildren, while continuing to support the Foundation.

For so many in our community, Marlene has been the first person to help guide them in the right direction after their diagnosis with a desmoid tumor. She has given reassuring support at our annual events, has been an inspiring example of perseverance and leadership, and has formed lasting bonds with patients and families. Her work with the patient and medical communities has accelerated the fight to better understand this disease.

From the bottom of our hearts, we thank Marlene for all she has given to the mission of the DTRF, and for her family’s constant support. We are grateful to have her continue in her new role as we advance desmoid tumor research together.

To learn more about the history of the DTRF, read Our Story.