*Update: Watch Jeanne Whiting, DTRF Co-Founder, accept the Global Genes Champions of Hope “RARE Champion in Advocacy” Award (beginning at time code 52:42).*

We’re thrilled to share that the DTRF has been honored with the Global Genes Champions of Hope “RARE Champion in Advocacy (Foundation)” award!

Through the RARE Champions of Hope Awards, Global Genes honors and recognizes “true champions for rare disease.” At the awards ceremony on November 18th, Global Genes recognized leaders who have made a significant impact in advocacy, industry, medical care, science, as well as up-and-coming rare disease leaders.

We were honored to be in the company of our fellow nominees and we deeply appreciate this significant recognition from Global Genes.

Our work would not be possible without the support of our incredible desmoid tumor community! THANK YOU!