DTRF is engaging its patient community to directly donate tissue samples through Pattern.org.
DTRF is excited to be working with Pattern.org to empower patients to direct their excess desmoid tumor tissue samples to research projects. Initially, samples donated via Pattern.org will be sent to the Broad Institute of MIT and Harvard (www.broadinstitute.org), where they will be used to attempt to develop research models.
If you or a patient you know has an upcoming surgery or biopsy, you can visit Pattern.org to learn more about the project. Online consent must be given at pattern.org prior to the procedure. In choosing to donate tissue, patients and their communities become partners in research, helping investigators like those at the Broad Institute.
DTRF’s partnership with Pattern.org and the Broad Institute is part of a larger effort to establish and genetically characterize cell lines, which are cells that keep dividing and growing over time, under certain conditions in a laboratory. In developing these cell lines, the Broad Institute is trying to enable the scientific community to improve our understanding of cancer, as well as desmoid tumors.