Donate Tissue for Research - Desmoid Tumor Research Foundation

Donate Tissue

DTRF is engaging its patient community to directly donate tissue samples through Pattern.orgIf you or a patient you know has an upcoming surgery, you can visit to learn more. Online consent must be given at prior to the procedure.

DTRF is excited to be working with to empower patients to direct their excess desmoid tumor tissue samples to research projects. Initially, samples donated via will be sent to the Broad Institute of MIT and Harvard (, where they will be used to attempt to develop research models.

In choosing to donate tissue, patients and their communities become partners in research, helping investigators like those at the Broad Institute. links to an electronic consent form. Should a patient decide to provide consent, arranges for excess tissue to be shipped to a research lab.

DTRF’s partnership with and the Broad Institute is part of a larger effort to establish and genetically characterize cell lines, which are cells that keep dividing and growing over time, under certain conditions in a laboratory. In developing these cell lines, the Broad Institute is trying to enable the scientific community to improve our understanding of cancer, as well as desmoid tumors.