Since surgeries in desmoid tumors have become less frequent, there is an increased need for fresh desmoid tissue samples for research.
DTRF is funding a desmoid tumor research project at the Broad Institute of MIT and Harvard to learn more about the disease and potential treatments. In order to pilot new technologies on desmoid tumors, the Broad team needs to acquire additional fresh tissue samples.
*You can help support this research by donating excess tumor tissue from an upcoming surgery.*
All you need to do is fill in an online consent form prior to surgery at Pattern.org and they will handle all the arrangements, working with your surgical institution. There is no cost or any additional effort on your part to participate! Due to several regulatory issues involved with living tissue across the border, currently, Pattern.org can only accept tissue from the contiguous U.S.
As a result of the ever-changing COVID-19 crisis, we know some surgeries are being delayed and some institutions may not be able to ship or receive samples. But if you are interested, you can still sign up on Pattern.org with a future surgery date (or leave the date blank if your surgery date is unknown).
Once you have consented online, if for any reason the Broad is unable to accept the sample due to the crisis, Pattern.org will notify you.
Please feel free to reach out to us here with any questions.
As always, thank you to those within our community who are willing and able to support our research initiatives!