Looking for a way to make a meaningful impact?
The DTRF Ambassador Program is a volunteer opportunity for patients, caregivers, and advocates to help drive awareness, build community, and accelerate research for desmoid tumors. Ambassadors serve as trusted voices in the community by connecting others to reliable resources, sharing lived experiences, and amplifying DTRF’s mission to ensure no one faces desmoid tumors alone.
The Ambassador Program offers meaningful ways to engage, from monthly meetups to ongoing initiatives that help shape DTRF’s priorities and expand its impact.
As a DTRF Ambassador, you will have the opportunity to:
• Participate in monthly meetups to learn, connect, and share ideas
• Share trusted DTRF resources with patients, caregivers, and your networks
• Amplify awareness through storytelling social media and community outreach
• Support DTRF events, campaigns, and fundraising efforts
• Engage in working groups and provide input on key initiatives
• Bring the patient voice into research, advocacy, and community conversations
We understand that life with a desmoid tumor and everything that comes with it can be unpredictable. As a DTRF Ambassador, you have flexibility in how you show up. We recognize that there will be moments when you can engage fully, and others when you may need to step back. Every level of participation is valued, and every DTRF Ambassador plays an important part in advancing our mission.
Interested in becoming a DTRF Ambassador?
Connect with a member of the DTRF team at info@dtrf.org to learn more about the Ambassador Program and how you can get started with the onboarding process.
