• 2026 DTRF “Together We Will” Weekend

    Join patients, caregivers, clinicians, researchers, and industry professionals for a Weekend of connection, learning, and shared understanding with the desmoid tumor community.  Whether you are newly diagnosed, have been navigating your […]

  • Swing for a Cure – St. Louis

    The Legends Country Club 625 The Legends Pkwy, Eureka, MO, United States

    The Ortwerth family invites you to the 8th Annual Swing For A Cure - St. Louis to raise funds for desmoid tumor research! Please join them on Monday, October 5th […]