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Desmoid Tumor Awareness Month
Every September, the DTRF and the international patient and caregiver community celebrate Desmoid Tumor Awareness Month.
The Desmoid Tumor Research Foundation
8th Annual JoeStrong Halloween Charity Volleyball Tournament
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Awareness
Swing For A Cure – St. Louis
The Ortwerth family invites you to the 5th Annual Swing For A Cure - St. Louis to raise funds for desmoid tumor research!
Faith Over Fear Fundraiser
West Catholic High School 801 Bristol Ave NW, Grand Rapids, MI, United StatesIf you are in the Grand Rapids area, come join Gabe and his local high school as they raise awareness and funds for the DTRF! Free Throw Contest @ Half-time. T-shirts will be available for purchase at the games. All proceeds from the event will go directly to the DTRF. If you can't attend this […]
WMK Classic: Lacrosse Tournament Fundraiser
1st Annual WMK Classic (presented by WYL) Charity 3-on-3 Small Ball Lacrosse Tournament benefitting the DTRF in Winchester, Massachusetts. Contact Chris Froeb for more information: chrisfroeb@gmail.com
Athina’s Ride
Penticton B.C.Athina's Ride is a cycling event that starts with training rides in the spring and culminates on July 13/14th weekend. You can either complete the ride on your own, with family & friends or join our ride led by Athina Merckx on the Saturday July 13th in Penticton, British Columbia. Come join Athina and support […]
Desmoid Tumor Awareness Month: Webinar with Dr. Dale Shepard
On Thursday, September 5th at 4pm ET, join us for a webinar featuring Dr. Dale Shepard from the Cleveland Clinic. He will explain how impactful the testing of biomarkers is in the diagnosis and treatment of desmoid tumors. He will also touch on genetic testing in relation to CTNNB1 mutations. Register Here Dale R. Shepard […]
Desmoid Tumor Awareness Month: Facebook Live with Megan Barrell
Celebrate Desmoid Tumor Awareness Month with us! On Thursday, September 11th at 3pm ET, join us for a Facebook Live featuring Megan Barrell, Desmoid Tumor Patient Advocate. The conversation will focus on Megan's lived experience and patient journey as a young adult with a desmoid tumor.
Golf For A Cure
Zeeland, MI$100 - Per Player includes 18 holes w/cart, reception, drink tickets, raffles All proceeds go to support research for a cure through the Desmoid Tumor Research Foundation Location: Crestview Golf Course Learn more by downloading the event guide here!
2024 Together We Will Weekend
Marriott 6580 Fannin Street, Houston, United StatesTogether we will advance research, empower our community with information, foster connection, and fundraise for a cure. We are excited to announce the DTRF Together We Will Weekend and RFA Walk is moving to Houston, TX on September 20-22, 2024! Events include the DTRF International Research Workshop for medical and industry professionals, along with DTRF […]
2024 International Research Workshop
Marriott 6580 Fannin Street, Houston, United StatesThe DTRF International Research Workshop features: Scientific talks on current research and treatment A forum to share research findings, develop new collaborations, bring new scientists into the desmoid tumor research field, and discuss innovations that will lead to new treatments Live questions/answers and discussions related to the scientific talks Group discussions focusing on gaps in […]
2024 Annual Patient Meeting
Marriott 6580 Fannin Street, Houston, United StatesFounded in 2007, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend. It always takes place on Saturday, the day before our annual RFA Walk. The meeting includes educational presentations by clinicians and researchers, with questions from the audience, as well as a talk by a desmoid patient. Content is geared […]
2024 RFA Walk
Houston Zoo 6200 Hermann Park Drive, Houston, TX, United StatesThe 2024 RFA Walk offers something for everyone; build a team, participate as an individual, create awareness, and help fundraise for a cure! Running for Answers (RFA), founded in Philadelphia by desmoid tumor patient Sera Snyder in 2009, is the annual DTRF signature fundraising event. This year, the desmoid tumor patient community and supporters will come […]
Swing for a Cure – St. Louis
The Ortwerth family invites you to the 6th Annual Swing For A Cure - St. Louis to raise funds for desmoid tumor research! Register HERE for this special event.
Desmoid Tumor Awareness Month: Facebook Live with Amanda MacKinnon
Celebrate Desmoid Tumor Awareness Month with us! On Thursday, September 25th at 3pm ET, join us for a Facebook Live featuring Amanda MacKinnon, caregiver of a desmoid tumor patient. The […]
