The DTRF is committed to providing opportunities for the patient, caregiver, and clinical and research communities to connect with each other, collaborate, learn, and help fundraise for a cure. Below we’ve highlighted our signature events, and we hope that you join us for one (or all) of them!
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Signature Events
DTRF Together We Will Weekend
This weekend brings together patients, caregivers, researchers, clinicians and industry professionals to connect, collaborate, and learn. Weekend events include DTRF Patient Meeting, DTRF Int’l Research Workshop, RFA 5K & Fun Run, and DTRF Community Networking Event.
DTRF Regional Patient Meetings
Similar to the annual DTRF Patient Meeting, experts in the field of desmoid tumors present to local patient and caregiver community members.
Desmoid Tumor Awareness Month
Every September, the DTRF and the international patient and caregiver community celebrate Desmoid Tumor Awareness Month.
DTRF Lunch N’ Learn: “Reproductive/fertility considerations for desmoid tumor patients”
During this virtual event, Dr. Laurie McKenzie will share how you can obtain a fertility assessment before and after treatment for desmoid tumors. She will share fertility preservation options available […]
3rd Annual Pink in the Rink
The Pink in the Rink fundraiser will include games played by the Orchard Lake Hockey Association followed by three games featuring the Orchard Lake St. Mary’s (OLSM) hockey teams vs […]
Recent Event Articles
November 11, 2024
DTRF Hosts the 2024 “Together We Will” Weekend in Houston
Read More about DTRF Hosts the 2024 “Together We Will” Weekend in Houston
June 6, 2024
Updated Desmoid Tumor Treatment Guidelines, funded in part by DTRF, Published in JAMA Oncology
June 6, 2024
