The DTRF is committed to providing opportunities for the patient, caregiver, and clinical and research communities to connect with each other, collaborate, learn, and help fundraise for a cure. Below we’ve highlighted our signature events, and we hope that you join us for one (or all) of them!
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Signature Events
DTRF Together We Will Weekend
This weekend brings together patients, caregivers, researchers, clinicians and industry professionals to connect, collaborate, and learn. Weekend events include DTRF Patient Meeting, DTRF Int’l Research Workshop, RFA 5K & Fun Run, and DTRF Community Networking Event.
DTRF Regional Patient Meetings
Similar to the annual DTRF Patient Meeting, experts in the field of desmoid tumors present to local patient and caregiver community members.
Desmoid Tumor Awareness Month
Every September, the DTRF and the international patient and caregiver community celebrate Desmoid Tumor Awareness Month.
2025 DTRF “Together We Will” Weekend
Mark your calendars for our annual in-person weekend! We are excited to announce the DTRF Together We Will Weekend will be held in Chicago, IL on September 12-13 (Fri/Sat), 2025! Featured events […]
Recent Event Articles
February 12, 2025
Recap: February Patient Education Event in Partnership with Penn Medicine
Read More about Recap: February Patient Education Event in Partnership with Penn Medicine
November 8, 2024
DTRF Hosts the 2024 “Together We Will” Weekend in Houston
Read More about DTRF Hosts the 2024 “Together We Will” Weekend in Houston
June 20, 2024
