Latest Past Events

Swing for a Cure – St. Louis

The Legends Country Club 625 The Legends Pkwy, Eureka

The Ortwerth family invites you to the 8th Annual Swing For A Cure - St. Louis to raise funds for desmoid tumor research! Please join them on Monday, October 5th […]

2026 DTRF “Together We Will” Weekend

Join patients, caregivers, clinicians, researchers, and industry professionals for a Weekend of connection, learning, and shared understanding with the desmoid tumor community.  Whether you are newly diagnosed, have been navigating your […]

Desmoid Defenders 5K Run/Walk

Queeny Park Saint Louis

Run for Awareness. Run for Research. Run for Hope. September is Desmoid Tumor Awareness Month, and the Desmoid Defenders 5K is an opportunity to bring our community together to support patients […]