2025 DTRF Annual Patient Meeting

“Introduction to desmoid tumors & Understanding the mechanisms of spontaneous tumor regression.”

with Candace L. Haddox, MD

“Latest Edition of the Global Management Consensus from The Desmoid Tumor Working Group.”

with Bernd Kasper, MD, PhD

“Treating Desmoid Tumors with Interventional Radiology: Histotripsy (High Intensity Focused Ultrasound or HiFU)/ Cryoablation/ Doxorubicin Eluting Embolization (DEE).”

with Eldad Elnekave, MD

Desmoid Tumor Patient Panel on Lived Experience

“We won’t stop until there is a CURE.”

with Jason Ortwerth, Desmoid Patient & DTRF Board Member

“Fertility Preservation in Patients with Desmoid Tumors.”

with MaryEllen Pavone, MD, MSCI

“Rehabilitation and Physiatry – A Functional Focus for Life.”

with Samman (Sam) Shahpar, MD and Senior Residents, Drs. Lydia Henderson and Ryan Kelly

“Long-Term Nirogacestat Treatment in Adult Patients With Desmoid Tumors: Updated Efficacy and Safety From the DeFi Trial.”

with Bernd Kasper, MD, PhD

“The Financial Burden of Desmoid Tumors in Adult Patients: Desmoid Tumor Research Foundation Natural History Study.”“Latest Edition of the Global Management Consensus from The Desmoid Tumor Working Group.”

with Shengfan (Sophia) Zhou, MS

“How does a Multidisciplinary Tumor Board work?”

Featuring Northwestern Medicine