In early 2021, Ana was diagnosed with a desmoid tumor of the right clavicle area. With very little information available, she had many questions and concerns about the radical surgery being recommended by her physicians. Through research, she was able to find a sarcoma center in Spain and chose a more conservative treatment method to address the growth and pain from her tumor.
“On this journey, I have learned that we must fight, and now I see that our doctors need more training in these rare diseases [to be able to] give all the information and options to patients to make the decisions that make us feel the most good.”
