Priscilla has struggled with desmoid tumors for over 12 years. The first one in her armpit and scapula area was 25×20 cm and was surgically removed. She went six years without a recurrence, but in 2020 doctors found three new tumors in the area. Her tumors have stabilized and she continues to follow up with an oncologist. Although she doesn’t experience pain most days, she still has some pain local to the site of the tumors.
“Patients with a desmoid tumor suffer from chronic daily pain (apart from irreversible damage), and only we know and feel what it is like. True family and friends support in the best way – giving love, affection and shoulder to cry on when everything seems to fall apart – but there are still people who judge it as something unimportant because it is not considered malignant.”