Registration is officially OPEN for the 2024 DTRF Together We Will Weekend and RFA Walk. - Register Now

The Desmoid Tumor Research Foundation

Invest in a Cure for Desmoid Tumors

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Learn more about how you can be involved in the research driving progress in desmoid tumor treatment and understanding.

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Listen first-hand to the latest information on desmoid treatments and research, and start new collaborations to move the science forward.

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Our Patient Meeting is a time to hear from clinicians, researchers, and desmoid patients and caregivers during our annual DTRF Together We Will Weekend.

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Be armed with the knowledge to advocate for yourself and make informed decisions.