Our funded research has made record-breaking advancements in understanding desmoid tumors.
Get to know desmoid tumor patients and caregivers living around the globe.
Find international online support groups and local patient advocacy organizations to support your journey.
Explore mental health resources to help support your journey.
Every September is Desmoid Tumor Awareness Month.
Research is integral in better understanding desmoid tumors and developing therapies to treat them. We fund research projects at some of the world’s top cancer research centers in basic science with the goal of facilitating collaboration between researchers to expedite the development of a cure.
If you have been diagnosed with a desmoid tumor, please consider joining our patient registry to help us better understand and research this disease.
Clinical trials are critical for rare diseases like desmoid tumors. With limited treatment options available for desmoid patients, clinical trials may be an important consideration in their unique treatment plan.
The DTRF Virtual Tumor Board is an international, quarterly videoconference where physicians and leading specialists present and discuss their challenging desmoid tumor cases. If you are facing challenges in treating a desmoid tumor case, your case may be eligible for review by the Virtual Tumor Board.
The DTRF is pleased to offer CME-accredited courses on various subjects relating to desmoid tumors. Learn from leading experts in the field!