Our Mission: Cure Desmoid Tumors
The Desmoid Tumor Research Foundation (DTRF) empowers and unites everyone committed to finding answers for the desmoid tumor community. We aggressively fund desmoid tumor research, accelerate the development of improved therapies, drive collaborations among clinicians and researchers worldwide, and support patients and doctors through education. Our goal is to find a cure for each and every patient diagnosed with this rare disease.
Learn more about submitting a grant proposal.
EXPLORE THE RESEARCH WE’VE FUNDED AT PRESTIGIOUS INSTITUTIONS AROUND THE WORLD.
| Year | Principal Investigator | Award Title | |
|---|---|---|---|
| Year2015 | Principal InvestigatorMatt van de Rijn, MD, PhD, Stanford University | Award Title“Next generation sequencing approach to desmoid tumors.” Year 2 of 3 | View Project |
| Year2015 | Principal InvestigatorMrinal Gounder, MD, Memorial Sloan Kettering Cancer Center | Award Title“Development of a patient reported outcome (PRO) tool in desmoid tumors.” Year 1 of 1 | View Project |
| Year2015 | Principal InvestigatorBenjamin Alman, MD, Duke University, with collaborators Robert Maki, MD, PhD, Mt. Sinai Medical Center; Alexander Lazar, MD Anderson Cancer Center; Alessandro Datti, PhD, Samuel Lunenfeld Research Institute | Award Title“Collaboration for a cure: identifying new therapeutic targets for desmoid tumors.” Year 3 of 4 | View Project |
| Year2014 | Principal InvestigatorMatt van de Rijn, MD, PhD, Stanford University | Award Title“Next generation sequencing approach to desmoid tumors.” No-cost extension. | View Project |
| Year2014 | Principal InvestigatorDaniela Segat, PhD, ''Mauro Baschirotto'' Institute for Rare Diseases - B.I.R.D. Foundation, Vicenza, Italy | Award Title“In vitro studies of the microenvironmental factors responsible for the proliferation and aggressiveness of desmoid tumor cells.” Year 1 of 1 | View Project |
| Year2014 | Principal InvestigatorRaphael E. Pollock, MD, PhD, Ohio State Comprehensive Cancer Center | Award Title“Reactivating of apoptosis: a potential therapeutic target for desmoid tumors with CTNNB1 S45F mutation.” Year 1 of 3. Project resulted in article here. | View Project |
| Year2014 | Principal InvestigatorNancy L. Cho, MD, Brigham and Women’s Hospital, Harvard Medical School | Award Title“Targeting hyaluronic acid in desmoid tumors.” Year 2 of 2 | View Project |
| Year2014 | Principal InvestigatorJustin M. Cates, MD, PhD, Vanderbilt University Medical Center | Award Title“Genetic determinants of local recurrence in desmoid-type fibromatosis.” Year 2 of 2 | View Project |
| Year2014 | Principal InvestigatorBenjamin Alman, MD, uke University, with collaborators Robert Maki, MD, PhD, Mt. Sinai Medical Center; Alexander Lazar, MD Anderson Cancer Center; Alessandro Datti, PhD, Samuel Lunenfeld Research Institute | Award Title“Collaboration for a cure: identifying new therapeutic targets for desmoid tumors.” Year 2 of 4 | View Project |
| Year2013 | Principal InvestigatorAaron Weiss, DO, Maine Medical Center, Portland, Maine | Award Title“Deregulated mTOR in desmoid-type fibromatosis: identification and validation of a new therapeutic target.” Year 1 of 1 | View Project |
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