The Desmoid Tumor Research Foundation

Video Library

Education, Research and Events

The Desmoid Tumor Research Foundation’s (DTRF) commitment to education, research and awareness is evident in our extensive Video Library. Use the search and filter tools to explore our impact.

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Zoey’s Story

2022 RFA Ceremony

“A Patient’s View” 

with Caregiver Bill Lundgren - 2022 DTRF Patient Meeting Webinar #1

“Nirogacestat” 

with Dr. Ravin Ratan, MD Anderson - 2022 DTRF Patient Meeting Webinar #2

“AL102” 

with Dr. Mark Agulnik, City of Hope - 2022 DTRF Patient Meeting Webinar #2

“Cryoablation and HiFU” 

with Dr. Joseph Erinjeri, Memorial Sloan Kettering - 2022 DTRF Patient Meeting Webinar #2

“Mock Tumor Board” 

with UPMC Experts - 2022 DTRF Patient Meeting Webinar #2