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The Desmoid Tumor Research Foundation

Video Library

Education, Research and Events

The Desmoid Tumor Research Foundation’s (DTRF) commitment to education, research and awareness is evident in our extensive Video Library. Use the search and filter tools to explore our impact.

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“Reproductive/ Fertility Considerations: Important things to know”

with Laurie J. McKenzie, MD

Recorded at the 2024 DTRF Patient Meeting

“One Caregiver’s Journey”

Special Guest: Amanda MacKinnon, Caregiver of a Desmoid Tumor Patient

2024 Desmoid Tumor Awareness Month Facebook Live

“One Desmoid Tumor Patient’s Journey”

Special Guest: Megan Barrell, Young Adult Desmoid Tumor Patient

2024 Desmoid Tumor Awareness Month Facebook Live

“Biomarkers: Predicting tumor behavior and choosing therapies”

Special Guest: Dale R. Shepard, MD, PhD, Medical Oncologist, Cleveland Clinic

2024 Desmoid Tumor Awareness Month Webinar

“Impact of nirogacestat on pain, a key symptom in patients with desmoid tumors (DT): Results from the phase 3 DeFi study” 

with Ravin Ratan, MD

Recorded at the 2023 DTRF Int'l Desmoid Tumor Research Workshop

“A Pilot Study Evaluating the Use of Sirolimus in Children and Young Adults with Desmoid-type Fibromatosis”

with Aaron Weiss, DO

Recorded at the 2023 DTRF Int'l Desmoid Tumor Research Workshop