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2026 DTRF “Together We Will” Weekend

September 25 - September 27

Join patients, caregivers, clinicians, researchers, and industry professionals for a Weekend of connection, learning, and shared understanding with the desmoid tumor community. 

Whether you are newly diagnosed, have been navigating your desmoid journey for years, are supporting a loved one, or working in the field as a clinician or researcher, YOU are welcome here!

All Weekend events will take place from Sept. 25-27th at the Sheraton Philadelphia University City Hotel. Please book your room in the DTRF room block as soon as possible.

Featured events include:

  • Friday, Sept. 25th: Designed for researchers and medical professionals, the DTRF International Research Workshop is a critically important, collaborative event for experts in desmoid tumor research from a variety of disciplines. The Research Workshop presents the latest information on desmoid treatments and research, and facilitates new collaborations to move the science forward each year.
  • Saturday, Sept. 26th: The DTRF Annual Patient Meeting is our signature patient and caregiver event. The meeting includes educational presentations by clinicians and researchers, community networking, Q&A sessions with leading desmoid experts, and an interactive Mock Tumor Board session. All content is geared toward topics of interest to our patient and caregiver community.
  • Sunday, Sept. 27th: Close out the Weekend with connection, movement, and purpose at the DTRF Wellness Commons. Choose from three guided activities: a group walk, yoga session, or hula class. Each activity is designed with accessibility considerations and modifications.

Register Today

 

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