Join patients, caregivers, clinicians, researchers, and industry professionals for a Weekend of connection, learning, and shared understanding with the desmoid tumor community. 

Whether you are newly diagnosed, have been navigating your desmoid journey for years, are supporting a loved one, or working in the field as a clinician or researcher, YOU are welcome here!

All Weekend events will take place from Sept. 25-27th at the Sheraton Philadelphia University City Hotel.

Featured events include:

• Friday, Sept. 25th: Designed for researchers and medical professionals, the DTRF International Research Workshop is a critically important, collaborative event for experts in desmoid tumor research from a variety of disciplines. The Research Workshop presents the latest information on desmoid treatments and research, and facilitates new collaborations to move the science forward each year.
• Saturday, Sept. 26th: The DTRF Annual Patient Meeting is our signature patient and caregiver event. The meeting includes educational presentations by clinicians and researchers, community networking, Q&A sessions with leading desmoid experts, and an interactive Mock Tumor Board session. All content is geared toward topics of interest to our patient and caregiver community.
• Sunday, Sept. 27th: Close out the Weekend with connection, movement, and purpose at the DTRF Wellness Commons. Choose from three guided activities: a group walk, yoga session, or hula class. Each activity is designed with accessibility considerations and modifications.

Online registration is now closed.

Onsite registration is still available the day of the event.