The purpose of this tool (called GODDESS) is to have the patient’s voice heard and pave the way for new endpoints in clinical trials. Partnering with Mrinal Gounder, MD at Memorial Sloan Kettering and PRO leaders at IQVIA, the tool would be validated in clinical trials gathering important data on patient quality of life and response to treatment.
Stay Up to Date as We Uncover More About Desmoid Tumors
Your Donation Changes Lives
Every donation, no matter the size, helps us continue our mission.