Today is the final day of Desmoid Tumor Awareness Month 2022!
Over the last month, we have shared stories from #DesmoidSurvivors around the globe at different stages in their journeys with different perspectives on managing life with these rare tumors. Thank you to all of the patients who submitted their stories, and to all who shared them across social media. You have helped raise #DesmoidAwareness!
To mark the end of this year’s campaign, please enjoy this musical montage of the many faces of our community. If you are living with this disease, please know you are not alone in this fight. We encourage you to explore our Patient & Caregiver Resources.
In case you missed them, recordings of our special Desmoid Tumor Awareness Month Facebook LIVE stream events are available:
- “One Desmoid Tumor Patient’s Journey” with Jackie Kucskar | WATCH
- “5 Mental Health Tools for Desmoid Patients” with Licensed Clinical Social Worker and Desmoid Patient Ashley Williams | WATCH
- “Getting the Most Out of your Consultation and Treatment Plan” with Dr. Candace Haddox from Dana-Farber Cancer Institute | WATCH
You can help raise #DesmoidAwareness year-round by talking about your desmoid tumor journey to family and friends, as well as your physicians, and raising funds for desmoid tumor research around special occasions like birthdays, diagnosis anniversaries, holidays, and more. Start a Facebook fundraiser with one click or learn about other Fundraising options.
Stay up to date with the latest in desmoid tumor-related news from the DTRF by favoriting us on Facebook, following us on Twitter (@dtrfoundation) and Instagram (@dtrfoundation), and by signing up for our emails.
Thank you for making a difference this September!