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The Desmoid Tumor Research Foundation

DTRF Hosts Successful 2022 Virtual DTRF “Together We Will” Weekend

Patient Meeting

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THANK YOU to our global desmoid tumor community of patients, care partners, researchers, and medical professionals, who attended and participated in the DTRF Together We Will Virtual Weekend. We are grateful to our platinum event sponsor, SpringWorks Therapeutics, for making the Weekend possible! #DTRFWeekend2022

Together we advanced research, connected, empowered ourselves, and fundraised for a cure, while celebrating our community and Desmoid Tumor Awareness Month!

  • 2022 DTRF International Desmoid Tumor Research Workshop: 160 dedicated physicians and researchers from more than 25 countries registered for our virtual 9th Annual DTRF International Desmoid Tumor Research Workshop! We’re honored to be able to host this important collaborative meeting each year, which helps steer the direction of desmoid tumor research and the Foundation’s funding priorities. Learn more about the annual DTRF International Desmoid Tumor Research Workshop.

If you couldn’t join us last weekend, here’s how you can access the recorded events:

  • 2022 DTRF Annual Patient Meeting Webinars 1, 2, & 3: The recordings of these educational events (including live Q&A) are available to view (along with transcripts) on our Patient Meeting Presentation/Media page.
  • 2022 DTRF RFA Virtual Challenge Ceremony: The ceremony was streamed LIVE on Facebook! Watch the recording of the entire ceremony. It’s sure to brighten your day! Thanks to the hard work of our RFA Challengers, and the generosity of other donors and sponsors, we’ve raised more than $130K, with donations still rolling in. Please note that your fundraising pages will stay open for a few months, so we encourage you to keep going! Or, start a Facebook fundraiser with one click.

The work continues to find better treatments and, one day, a cure! Once again, on behalf of the DTRF team, THANK YOU!

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Registration is *NOW OPEN* at DTRF.org/weekend for the 2022 DTRF Together We Will Virtual Weekend (Sept. 23-25), kicking off our summer-long RFA Virtual Challenge virtual fundraiser!

As a reminder, the primary events of our signature September weekend will be held *virtually* once again. However, we also hope to host a special, outdoor, in-person community event at Fairmount Park in Philadelphia on the morning of Sunday, September 25th.

Plan to join your community this fall, and TOGETHER WE WILL…

  • CONNECT patients and care partners from across the globe at our International Virtual Community Networking Event.
  • EMPOWER OURSELVES with information from top physicians and researchers studying and treating desmoid tumors at the signature DTRF Annual Patient Meeting Webinars.
  • FUND A CURE all summer long with the #RFAVirtualChallenge community fundraiser! Go the #Distance4Desmoids and we’ll celebrate with a LIVE virtual ceremony to close the Weekend. Learn more.
  • ADVANCE RESEARCH by hosting some of the brightest researchers and medical professionals from across the globe at the DTRF International Desmoid Tumor Research Workshop. (*Researchers and medical professionals ONLY*)

Stay informed by adding us to your Favorites on Facebook and signing up to receive our emails.

Learn more about the Weekend events.

(#DTRFWeekend2022)

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Thank you to our global desmoid tumor community of patients, care partners, and medical professionals, who attended and participated in the DTRF Together We Will Virtual Weekend! (#DTRFWeekend2021)

Together we advanced research, connected, empowered ourselves, and fundraised for a cure, while celebrating Desmoid Tumor Awareness Month!

**Thanks to the hard work of our RFA Challengers, and the generosity of other donors and sponsors, we’ve SURPASSED our fundraising goal of $200,000!** Please note that your fundraising pages will stay open for a few months, so we encourage you to keep going! Or, start a Facebook fundraiser with one click. 

  • 2021 DTRF International Desmoid Tumor Research Workshop:  170 dedicated physicians and researchers from ~100 institutions in 30 countries registered for our virtual 8th Annual DTRF International Desmoid Tumor Research Workshop! We’re honored to be able to host this important collaborative meeting each year, which helps steer the direction of desmoid tumor research and the Foundation’s funding priorities.

If you couldn’t join us last weekend, here’s how you can access the recorded events:

  • 2021 DTRF Annual Patient Meeting Webinars 1 & 2: The recordings of these educational events (including live Q&A) are available to view on our Patient Meeting page.
  •  2021 DTRF RFA Virtual Challenge Ceremony: This uplifting celebration is available to view on Facebook.

The work continues to find better treatments and, one day, a cure! Once again, on behalf of the DTRF team, THANK YOU!