The Desmoid Tumor Research Foundation

“Frequently people will say: ‘I’ve never seen this before. I don’t know how to treat this.’ […] When we go to our doctors hoping that they would have answers and they do not, it becomes an extremely frustrating, depressing, and anxiety-provoking process in so many ways. It is in this context of dealing with a rare disease that a patient advocacy group is so essential.”

Researcher

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Mrinal Gounder, MD

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Research Workshop Attendee

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Research Workshop Attendee

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Research Workshop Attendee

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Research Workshop Attendee

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Dr. Benjamin Alman