Megan was diagnosed with a desmoid tumor in 2023. She had a previous diagnosis from 2020 of Hodgkin’s Lymphoma, so was familiar with being an oncology patient, but the rarity of desmoid tumors came with a new set of obstacles. Megan was first introduced to DTRF at a patient-led fundraiser, and she began being actively involved with DTRF after the Together We Will weekend in 2025. She jumped right into peer-2-peer fundraising and hosting local fundraising events. In December of 2025, Megan joined the DTRF Ambassador program to help bring purpose to her desmoid tumor journey.
She has her Bachelors of Science in Clinical Exercise Science from Grand Valley State University and has 5 years of experience in the medical field, 5 years of experience in the fitness world, and has been involved with volunteering throughout her life. Megan is very passionate about the non-profit space and serving communities, with experience being a Vice President of a small non-profit and a founder of a first year girl’s rugby team. Throughout the years, she has gained skills in advocacy, fundraising, project leading, event planning, and coaching.
There are so many things out of our control as desmoid tumor patients, but one thing that is in our control is using our voices to help spread awareness and be an advocate. This is something that is at the heart of Megan’s drive to help serve DTRF and the desmoid community.
Megan lives in west Michigan and enjoys spending her time with her parents and four younger siblings. She enjoys being close to the lakeshore to enjoy Lake Michigan sunsets and is an avid reader.
