The Desmoid Tumor Research Foundation
In honor of Sarcoma Awareness Month, the Desmoid Tumor Research Foundation (DTRF) invites you to a new story-sharing event featuring Amanda is an artist and keynote speaker who is both an Ewing’s sarcoma survivor and currently living with a desmoid tumor. This special virtual event will offer a comforting and supportive space to hear Amanda’s […]
Join the Augdahl Family for a golf tournament in Zeeland, Michigan! Date: August 30, 2026 Time: 12:00PM registration with 1:00PM shotgun Cost: $125.00 per person Location: Crestview Golf Course - Zeeland, Michigan All proceeds of this event go to support research for a cure through the Desmoid Tumor Research Foundation. Contact: Christ Augdahl (616) 890-6197 […]
Join patients, caregivers, clinicians, researchers, and industry professionals for a Weekend of connection, learning, and shared understanding with the desmoid tumor community. Whether you are newly diagnosed, have been navigating your desmoid journey for years, are supporting a loved one, or working in the field as a clinician or researcher, YOU are welcome here! All Weekend events will […]
The Ortwerth family invites you to the 8th Annual Swing For A Cure - St. Louis to raise funds for desmoid tumor research! Please join them on Monday, October 5th for an 18 hole, four player scramble at the newly renovated Robert Trent Jones golf course at The Legends Country Club in Eureka, MO. Learn […]
