• Living with Desmoid Tumors: A DTRF Patient Education Experience

    Living with Desmoid Tumors: A DTRF Education Experience is a one day, in-person event designed for patients and caregivers seeking trusted information about desmoid tumors and connection with a community that understands their lived experiences. What can you expect? This event is designed with YOU in mind. Every session of this special, one day event is purposefully curated […]

  • 2026 DTRF “Together We Will” Weekend

    The annual DTRF Together We Will Weekend brings together patients, caregivers, researchers, clinicians and industry professionals to connect, collaborate, and learn together. Featured events include: Friday, Sept. 25th: Designed for researchers and medical professionals only, the DTRF International Research Workshop is a critically important, collaborative event for experts in desmoid tumor research from a variety of disciplines. The Research Workshop presents […]