The Desmoid Tumor Research Foundation
Join the DTRF as we officially launch Desmoid Tumor Awareness Month (DTAM) with a virtual gathering centered on connection and shared experiences! Designed with input from DTRF Ambassadors, this patient-centered event will welcome people at every stage of the desmoid tumor journey, including those who are newly diagnosed, longtime community members, and caregivers. Attendees will […]
Run for Awareness. Run for Research. Run for Hope. September is Desmoid Tumor Awareness Month, and the Desmoid Defenders 5K is an opportunity to bring our community together to support patients and families affected by desmoid tumors while helping advance critical research. Participants can choose between a timed 5K Run or a 1-Mile Walk/Fun Run, or if you […]
Join patients, caregivers, clinicians, researchers, and industry professionals for a Weekend of connection, learning, and shared understanding with the desmoid tumor community. Whether you are newly diagnosed, have been navigating your desmoid journey for years, are supporting a loved one, or working in the field as a clinician or researcher, YOU are welcome here! All Weekend events will […]
