Registration is officially OPEN for the 2024 DTRF Together We Will Weekend and RFA Walk. - Register Now

Golf For A Cure

Golf For A Cure

Zeeland, MI

$100 - Per Player includes 18 holes w/cart, reception, drink tickets, raffles All proceeds go to support research for a cure through the Desmoid Tumor Research Foundation Location: Crestview Golf Course Learn more by downloading the event guide here!

2024 Together We Will Weekend

Marriott 6580 Fannin Street, Houston, United States

Together we will advance research, empower our community with information, foster connection, and fundraise for a cure. We are excited to announce the DTRF Together We Will Weekend and RFA Walk is moving to Houston, TX on September 20-22, 2024! Events include the DTRF International Research Workshop for medical and industry professionals, along with DTRF […]

2024 International Research Workshop

Marriott 6580 Fannin Street, Houston, United States

The DTRF International Research Workshop features: Scientific talks on current research and treatment A forum to share research findings, develop new collaborations, bring new scientists into the desmoid tumor research field, and discuss innovations that will lead to new treatments Live questions/answers and discussions related to the scientific talks Group discussions focusing on gaps in […]

2024 Annual Patient Meeting

Marriott 6580 Fannin Street, Houston, United States

Founded in 2007, the annual DTRF Patient Meeting is our signature patient support event of the DTRF Together We Will Weekend. It always takes place on Saturday, the day before our annual RFA Walk. The meeting includes educational presentations by clinicians and researchers, with questions from the audience, as well as a talk by a desmoid patient. Content is geared […]

2024 RFA Walk

Houston Zoo 6200 Hermann Park Drive, Houston, TX, United States

The 2024 RFA Walk offers something for everyone; build a team, participate as an individual, create awareness, and help fundraise for a cure! Running for Answers (RFA), founded in Philadelphia by desmoid tumor patient Sera Snyder in 2009, is the annual DTRF signature fundraising event. This year, the desmoid tumor patient community and supporters will come […]

Swing for a Cure – St. Louis

The Ortwerth family invites you to the 6th Annual Swing For A Cure - St. Louis to raise funds for desmoid tumor research! Register HERE for this special event.