Latest Past Events

2026 DTRF “Together We Will” Weekend

Join patients, caregivers, clinicians, researchers, and industry professionals for a Weekend of connection, learning, and shared understanding with the desmoid tumor community.  Whether you are newly diagnosed, have been navigating your desmoid journey for years, are supporting a loved one, or working in the field as a clinician or researcher, YOU are welcome here! All Weekend events will […]

From Research to Real Life: What the RINGSIDE Trial Results Mean for the Desmoid Community

The presentation of the RINGSIDE trial data in May marked an important moment for the desmoid tumor community. Join the DTRF and Dr. Rashmi Chugh, MD, of University of Michigan Health, for a timely discussion of the latest findings from the clinical study evaluating varegacestat, an investigational gamma secretase inhibitor (GSI) being studied for the […]

Navigating Desmoid Tumor Treatment Options & Insights on Zolucatetide (FOG-001)

Join us for our upcoming webinar, "Navigating Desmoid Tumor Treatment Options & Insights on Zolucatetide (FOG-001)" with Dr. Gregory Cote, DTRF Medical Advisory Board Member and medical oncologist at Mass General Brigham Cancer Institute to explore current treatment options for people living with desmoid tumors. This session will include a high-level overview of today’s treatment […]