Latest Past Events

2026 DTRF “Together We Will” Weekend

Join patients, caregivers, clinicians, researchers, and industry professionals for a Weekend of connection, learning, and shared understanding with the desmoid tumor community.  Whether you are newly diagnosed, have been navigating your desmoid journey for years, are supporting a loved one, or working in the field as a clinician or researcher, YOU are welcome here! All Weekend events will […]

From Research to Real Life: What the RINGSIDE Trial Results Mean for the Desmoid Community

The presentation of the RINGSIDE trial data in May marked an important moment for the desmoid tumor community. Join the DTRF and Dr. Rashmi Chugh, MD, of University of Michigan Health, for a timely discussion of the latest findings from the clinical study evaluating varegacestat, an investigational gamma secretase inhibitor (GSI) being studied for the […]

DTRF Educational Webinar: Pregnancy and Desmoid Tumors

The understanding of pregnancy-associated desmoids has increased significantly over the past several years. In this virtual educational webinar, the panel will discuss the literature and their approach to desmoids. Management of desmoids in the setting of pregnancy should be tailored to the patient and specific clinical situation and typically results in a healthy pregnancy and […]