Join patients, caregivers, clinicians, researchers, and industry professionals for a Weekend of connection, learning, and shared understanding with the desmoid tumor community.  Whether you are newly diagnosed, have been navigating your […]

Online registration is closed. In-person registration is still available at event check-in. Join us for the 2025 DTRF Together We Will Weekend in Chicago, IL on September 12-13 (Fri/Sat)! Featured events […]

Join us for a conversation about the classification and language used to describe desmoid tumors. We'll hear about the challenges in communication faced by both patients and doctors, and what […]