RFA Virtual Challenge

Latest Past Events

Swing For A Cure – St. Louis

The Ortwerth family invites you to the 5th Annual Swing For A Cure - St. Louis to raise funds for desmoid tumor research!

RFA 5K & Fun Fun

Fairmount Park 4231 Avenue of the Republic, Philadelphia

The RFA 5K & Fun Run, founded by desmoid tumor patient Sera Snyder in 2010, is our annual signature fundraising event and the celebratory finale of the annual DTRF Together We Will Weekend. The desmoid tumor community and supporters gather to walk, run, and roll on our accessible course together as a unified force against […]

DTRF Community Networking Event (DTRF Together We Will Weekend event)

Wyndham Philadelphia Historic District 400 Arch St, Philadelphia

Community connections can be transformative and are essential to the patient and caregiver journey. Our Community Networking Event is a wonderful opportunity to have one-on-one, real-time conversations with fellow patients and caregivers. The event is structured to provide a natural way to get to know attendees and share experiences by connecting in small groups in […]