When Lilah was two, a tumor started growing in her wrist. After surgery, the pathology came back as a desmoid tumor. Although the surgeon had clear margins, the tumor grew back twice as big a few months later. Lilah is eight now and her desmoid is still in her wrist, but it has remained stable.
“I get nervous wondering if or when it will grow again, and what might happen with my desmoid in the future. It’s in the wrist of the hand I write with, and I love to write and draw and do acro and tumbling, so I hope that it won’t prevent me from doing what I love someday.”