The Desmoid Tumor Research Foundation

Video Library

Education, Research and Events

The Desmoid Tumor Research Foundation’s (DTRF) commitment to education, research and awareness is evident in our extensive Video Library. Use the search and filter tools to explore our impact.

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Times Are A-Changin’ Series: Heading into Young Adulthood with a Desmoid Tumor

Times Are A-Changin' Series: Heading into Young Adulthood with a Desmoid Tumor - 2024 Patient Education Webinar Facilitator & Patient Advocate: Dakota Fisher-Vance

2024 Patient Education Webinar
Facilitator & Patient Advocate: Dakota Fisher-Vance

“New Desmoid Tumor ICD-10-CM Codes”

with Linda Holtzman, MHA, RHIA, CCS, CCS-P, CPC, COC

Recorded at the 2023 DTRF Int'l Desmoid Tumor Research Workshop

LIVE: “Fundraising for Answers”

with DTRF Development Director, Debbie Nathan

LIVE: “One Desmoid Tumor Patient’s Journey”

with #DesmoidWarrior John MacKinnon (2023)

“Active Surveillance as a Desmoid Tumor Treatment”

with Alessandro Gronchi, MD

Recorded at the 2023 DTRF Patient Meeting

“An Update on the DTRF Patient Registry – September 2023”

with Kelly Mercier, PhD

Recorded at the 2023 DTRF Patient Meeting

“Arterial doxorubicin eluting embolization as a desmoid tumor treatment”

with Eldad Elnekave, MD

Recorded at the 2023 DTRF Patient Meeting

“Imaging of Desmoid Tumors”

with Robert Lefkowitz, MD

Recorded at the 2023 DTRF Patient Meeting

“What We’ve Learned from the International Pregnancy Study”

with Marco Fiore, MD, FACS

Recorded at the 2023 DTRF Patient Meeting

“RINGSIDE Phase 2/3 Trial of AL102 for Treatment of Desmoid Tumors (DT)”

Updated Phase 2 Results" with Mrinal Gounder, MD

Recorded at the 2023 DTRF Patient Meeting

Desmoid Tumor Patient Gabe Augdahl Speaks at the 2023 DTRF Patient Meeting

Recorded at the 2023 DTRF Patient Meeting

“Mock Tumor Board”

presented at the 2023 DTRF Patient Meeting

Moderator:
Palma Dileo, MD, Consultant Medical Oncologist, London Sarcoma Service, University College London Hospitals

Panelists:
Ravin Ratan, MD, Associate Professor, Sarcoma Medical Oncology, MD Anderson Cancer Center

Alessandro Gronchi, MD, Chair, Sarcoma Service, Department of Surgery, Fondazione IRCCS Istituto Nazionale dei Tumori di Milano (Italy)

Eldad Elnekave, MD, Director, Kahn Unit for Interventional Oncology, Shaare Tzedek Medical Center (Jerusalem, Israel)

Recorded at the 2023 DTRF Patient Meeting