Education, Research and Events

“FAP and Medical Therapies” 

with Dr. Dale Shepard, Cleveland Clinic - 2022 DTRF Patient Meeting Webinar #3

“Mock Tumor Board” 

with UPMC Experts - 2022 DTRF Patient Meeting Webinar #2

“Cryoablation and HiFU” 

with Dr. Joseph Erinjeri, Memorial Sloan Kettering - 2022 DTRF Patient Meeting Webinar #2

“AL102” 

with Dr. Mark Agulnik, City of Hope - 2022 DTRF Patient Meeting Webinar #2

“Nirogacestat” 

with Dr. Ravin Ratan, MD Anderson - 2022 DTRF Patient Meeting Webinar #2

“A Patient’s View” 

with Caregiver Bill Lundgren - 2022 DTRF Patient Meeting Webinar #1

“Sharing Your Desmoid Journey – The DTRF Patient Registry” 

with Kelly Mercier, PhD - 2022 DTRF Patient Meeting Webinar #1

LIVE: “Getting the Most Out of Your Consultation and Treatment Plan” 

with Dr. Candace Haddox from Dana-Farber Cancer Institute (2022)

LIVE: “5 Mental Health Strategies for Desmoid Patients” 

with Ashley Williams, Licensed Clinical Social Worker (LCSW) and desmoid tumor patient (2022)

“Dealing with Desmoids: Mental Health Tools for the Desmoid Patient – Session #5 – Making Meaning

Dealing with Desmoids: Mental Health Tools for the Desmoid Patient – Session #4: Self-Care for the Desmoid Patient

Dealing with Desmoids: Mental Health Tools for the Desmoid Patient – Session #3: Coping with Loneliness, Fear, and Anxiety