The Desmoid Tumor Research Foundation

Video Library

Education, Research and Events

The Desmoid Tumor Research Foundation’s (DTRF) commitment to education, research and awareness is evident in our extensive Video Library. Use the search and filter tools to explore our impact.

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“One Desmoid Tumor Patient’s Journey”

Special Guest: Tiffany Braswell

Facebook Live: 2025 Desmoid Tumor Awareness Month

“How does a Multidisciplinary Tumor Board work?”

Featuring Northwestern Medicine

Recorded at the 2025 DTRF Annual Patient Meeting

“Long-Term Nirogacestat Treatment in Adult Patients With Desmoid Tumors: Updated Efficacy and Safety From the DeFi Trial.”

with Bernd Kasper, MD, PhD

Recorded at the 2025 DTRF Annual Patient Meeting

“Rehabilitation and Physiatry – A Functional Focus for Life.”

with Samman (Sam) Shahpar, MD and Senior Residents, Drs. Lydia Henderson and Ryan Kelly

Recorded at the 2025 DTRF Annual Patient Meeting

“Fertility Preservation in Patients with Desmoid Tumors.”

with MaryEllen Pavone, MD, MSCI

Recorded at the 2025 DTRF Annual Patient Meeting

“We won’t stop until there is a CURE.”

with Jason Ortwerth, Desmoid Patient & DTRF Board Member

Recorded at the 2025 DTRF Annual Patient Meeting