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The Desmoid Tumor Research Foundation

Video Library

Education, Research and Events

The Desmoid Tumor Research Foundation’s (DTRF) commitment to education, research and awareness is evident in our extensive Video Library. Use the search and filter tools to explore our impact.

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“Concurrent genotyping and transcriptomics of Desmoid Tumor single cells and nuclei to study disease trajectory and therapeutic vulnerability: DTRF Planning project update.”

with Mushriq Al-Jazrawe, PhD,

Recorded at the 2025 DTRF Int’l Desmoid Tumor Research Workshop

“Multiomic profiling uncovers integral immune molecules that drive the pathogenic fibroblast milieu in desmoid tumors.”

with Cristabelle De Souza, PhD

Recorded at the 2025 DTRF Int’l Desmoid Tumor Research Workshop

“Exploring the mechanism of action in FOG-001.”

with Gary Schwartz, MD, FASCO

Recorded at the 2025 DTRF Int’l Desmoid Tumor Research Workshop

“Real-World Data from a Single Institution on Nirogacestat for Refractory, Symptomatic Desmoid Tumor: Dosing, Adverse Event Management and Symptom Improvement from Medical Record Review.”

with Andrea Penrose, BA

Recorded at the 2025 DTRF Int’l Desmoid Tumor Research Workshop

“Analysis of Changes in T2-Weighted Signal Intensity and Tumor Volume and Exposure-Response in the Ringside Phase 2 Study of Varegacestat in Patients with Desmoid Tumors.”

with Mrinal Gounder, MD

Recorded at the 2025 DTRF Int’l Desmoid Tumor Research Workshop

“To see the early effect of Sorafenib on cognition, cardiovascular and reproductive functions in patients with fibromatosis.”

with Sameer Rastogi, MD

Recorded at the 2025 DTRF Int’l Desmoid Tumor Research Workshop